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Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
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Does this sound like POTS?

Discussion in 'Problems Standing: Orthostatic Intolerance; POTS' started by jonnyboy, Oct 14, 2011.

  1. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    Going up to 80 after being 70 while sitting is normal. But going up to 100+ (30 or more higher than when sitting) when you stood means you have POTS.
     
  2. jonnyboy

    jonnyboy

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    Cheers Valentijn,

    I mentioned the possibilty of POTS to my consultant before I had the tests yesterday. He knew all about it. What was interesting was his comments. He said POTS just literally describes a symptom i.e. a fast heart rate upon standing...he likened it to say have a blue hand, and calling it blue hand syndrome. He said what were are looking for in these tests is 'why' you might have it, so the underlying cause.
     
  3. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Huh? Guess he doesn't know what POTS is. POTS has tachycardia, yes. It is a dysfunction of the autonomic nervous system with MANY problems. Some are serious. We have lost some POTSYS over the last few months. Makes me sad if your doctor has no clue.
     
  4. jonnyboy

    jonnyboy

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    Sally I'm not sure, he was an autonomic physicist, and he knew what I meant by POTS, which is more than my regular doctor who had never heard of it. I think at the time he wasn't wanting to get drawn into a long conversation about POTS with me, as this was before my test so he didn't have any of my data to look at it. I think what he was getting at was POTS has many causes, and if I had it they would try to work out why I had it. I think I just explained that badly in the last post. The doc wasn't in anyway making light of the condition to me.

    Sorry if my last post sounded dismissive, as I didn't intend it to be.
     
  5. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    The doctor made it sound bad, not you. It is fine. :D

    I have read textbooks, papers, studies, and I have a great integrative doctor that understands it well. It doesn't matter at all what a doctor that doesn't understand it would say. Specialists seem to know very little about it which is odd. I know so many POTSYS that get very little help from neurologists.
     
  6. ahimsa

    ahimsa Senior Member

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    That's good to hear. I have read that there are several different kinds of POTS and depending on the kind there may be different treatments. (e.g., here are a couple links that I found - http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2600095/ and http://circ.ahajournals.org/content/117/21/2814.full ) So, if he was an expert, then maybe that's what he was talking about. Keep us posted if you can!

    Edited: fixed the link -- I had pasted in the wrong one

    By the way, here's one quote from that second link - "It is presently felt that in many patients this form of POTS is an autoimmune disorder."
     
  7. taniaaust1

    taniaaust1

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    Hi :) Glad to hear you are managing to get some tests done. An increase of 30 beats per minute shift from a laying reading to a standing reading is POTS. So yeah depending on your increase you may not now need tilt table testing.

    With ME/CFS it is always a good idea to avoid chemicals where possible as our bodies dont seem to break down these as well or something (many of our pathways have issues).

    Many of us end up developing Multiple chemical sensitivity too and I personally think the more exposure someone has to chemicals with our condition, possibly the more likely we are to get MCS which we are at high risk for due to the ME anyway. (I developed MCS after 7-8 years of ME ..when I was in a better point of my illness and working part time using chemicals as I was doing house cleaning for people).

    I recommend not just looking at changing to non chemical shampoos put also look at what other chemicals you use at home too and look at changing everything to safer things which possibly could lessen your risk of getting the MCS part of ME.
     

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