Dr. Bateman answers IOM questions from the community: Part 1
Clark Ellis brings us Part 1 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community ...
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Does CBT or GET Therapy Reduce Disability in CFS? Objective Measures Are Necessary (Kewley, 2013)

Discussion in 'Latest ME/CFS Research' started by Dolphin, Sep 17, 2013.

  1. Dolphin

    Dolphin Senior Member

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    Congratulations to Andrew Kewley on the publication of this paper (note: I had to shorten the title to get it to fit into the title of this thread)


     
    WillowJ, Sparrowhawk, Sasha and 7 others like this.
  2. Esther12

    Esther12 Senior Member

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    Did some sanity just slip into the literature on CBT and CFS? This feels so wrong.
     
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  3. Sean

    Sean Senior Member

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    Well done, Andrew.

    :thumbsup:

    (Don't worry, Esther, I'm sure the usual shabby insanity will shortly be resumed.)
     
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  4. Marco

    Marco Old blackguard

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    Near Cognac, France
    In the wake of PACE I wrote a response to the Lancet (not published - shucks) that suggested that the PACE trial was not 'well-anchored'.

    There's an established literature on the concept.

    In short in most clinical (physiological) interventions you probably have a one or more objective measures (therapy given and physiological correlates) but its then desirable to have subjective responses from patients (reduced symptoms, overall QOL) to determine if physiological measures correlate with subjective well being.

    As you are all painfully aware PACE starts and ends with subjective responses, which the therapy aims to manipulate, with no objective data to 'anchor' these data.

    Impossible to infer anything from PACE.
     
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  5. Dolphin

    Dolphin Senior Member

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    The unpublished letter is here: http://forums.phoenixrising.me/inde...-not-accepted-by-the-lancet.9761/#post-178595 in case anyone is interested.
     
    Bob likes this.
  6. Dolphin

    Dolphin Senior Member

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    Valentijn likes this.
  7. WillowJ

    WillowJ Senior Member

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    WA, USA
    excellent!
     

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