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Does anyone get ringing in ears from b vitamins?

Discussion in 'General ME/CFS Discussion' started by jwat87, Feb 20, 2017.

  1. jwat87

    jwat87

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    I get a high pitch frequency sound mainly in one ear, it sounds different from tinnitus and not as bad. It's hard to tell what causes it because it comes on randomly, sometimes from food and sometimes from methylfolate.
     
  2. 62milestogojoe

    62milestogojoe What's a forum then?

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    UK
    Hi jwat, yes I used to get this phenomenon but called it tinnitus, strangely, one of the warning signs I got of impending crash was a kind of clicking sound in my ears together with aching in my thigh muscles. I learned to respond to this by immediately stopping what I was doing and resting.
     
  3. Mohawk1995

    Mohawk1995 Senior Member

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    I am not an ENT or Audiologist, but I have had many patients who complain of ringing in the ears or hearing odd sounds as 62milestojoe mentioned. I usually take it into account and look at symptom behavior. Constant or Intermittent? Causal factors (loud noises, upon change of position, etc...) and Associated Factors (does it occur immediately before or after some other symptoms).
    • If it is constant, I would refer the patient back to PCP or ENT for further work up.
    • If it is intermittent and associated with Causal or Associated Factors I would track it just like any other symptom associated with those factors (providing all other test results are negative).
    • If it is intermittent with no particular Causal or Associated Factors I tend to think it is a form of a neuro-physiological feedback loop. Could be neural outflow associated with some other Nerve inflammation/ immune response ie ME, Migraine, Fibromyalgia or some other undetermined underlying issue such as High BP, Cardiac, pulmonary or disease state. This I would consider as a centrally up-regulated response.
    It is always something I have taken note of and considered in relationship to every other finding. It also sparks my alertness to unusual or potentially hidden causes and leads me to ask questions about fatigue, sleep, brain fog, heavy use of stimulants (lots of caffeine), gut problems, activity level and tolerance and/or unusual pain complaints.

    Not that this answers your questions, but may give you a different perspective.
     
    PatJ and 62milestogojoe like this.
  4. 62milestogojoe

    62milestogojoe What's a forum then?

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    UK
    Hi Mohawk, that is an excellent classification. for me it was type 3 and very irritating.
     
  5. unto

    unto Senior Member

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    I hum, hiss, and other sounds (fax type) ..... in the ears for more than 20 years
    once for a few months it seemed ke the sound came not from the ear
    but from the top of the head, then over time he is back in the ears;
    faeces of accurate controls and end the otolaryngologist told me I had no problems
    and that those noises were probably due to the microcirculation of the small vessels
    around the ear (inflammation and / or narrowing).
     
  6. maybe some day

    maybe some day Senior Member

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    San Francisco bay area
    Yep, I have it too, all the time. Its worse when Im in a flare up. I get that clicking noise at times when I lay down. Inner ear can really get messed up with cfs. Balance issues, etc. Not fun
     

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