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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Does anybody else now do this?

Discussion in 'Skeleton, Skin, Muscles, Hair, Teeth, and Nails' started by jules78, Mar 14, 2014.

  1. jules78

    jules78

    Messages:
    65
    Likes:
    21
    Uk
    Hiya I've noticed since having cfs, though I can't remember at what point I started doing it.

    That when I'm laying down or sitting I tend to clench my hand up into a fist, but with my thumb tucked in and I bend my wrist downwards.

    As if say I was trying to get my fingers to touch the inside of my wrist, if that makes sense?! :confused:

    Anyway I was just wondering if anyone else does this, or if anyone could offer any suggestions as to why I might do it.....

    Thank you :)
  2. Mithriel

    Mithriel Senior Member

    Messages:
    564
    Likes:
    40
    Scotland
    I have just seen this post, sorry

    This has happened to me for many years and now it happens all over my body. Muscles normally exert an equal force so the pairs stay straight. When one gets weak they get out of balance, well something like that. It is what happens in things like cerbral palsy and after a stroke so there must be a nerve involvement too. There is a particular pattern to which muscle bends.

    When I am paying attention I straighten my limbs out but they sneak back and stay that way when I am asleep. I have tied little pads of facecloth to my palms to stop my fingernails cutting my palms during the night.

    It became really bad and disabling so I was put on baclofen which is a muscle relaxant and that helped as it is exhausting keeping muscles tensed all the time even if it is involuntary.

    Also found that aromatherapy massage helps.

    Mithriel

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