New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Doctors in Colorado

Discussion in 'ME/CFS Doctors' started by A Stevenson, Sep 19, 2012.

  1. A Stevenson

    A Stevenson *****

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    I am looking for a specialist in Colorado for my daughter who appears to have a pretty serious case of CFS. I am having a heck of a time finding anyone who really knows their stuff. And it appears that our health insurance won't cover this??? I am new to all of this..

    Is that pretty common? Any suggestions would be helpful. We are tearing our hair out with consult after consult.. No good referrals yet.
     
  2. Valentijn

    Valentijn Activity Level: 3

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    Amersfoort, Netherlands
    If you can't find a specialist, an alternative is to find a cooperative medical doctor or naturopathic doctor who is willing to order tests and try various treatments. You can combine that with doing your own research online, to try to come up with something helpful.
     
  3. SOC

    SOC Senior Member

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    It's next to impossible to find a doctor worth anything locally. To make things worse, unknowledgeable local doctors can make your daughter's condition much worse.

    We've resorted to traveling to FL (from IL) to be seen by some of the best specialists. It's not so bad since you only have to go once or twice a year and do phone appointments in between. There are some good specialists closer to you than FL, too, but it's still probably a plane ride.

    I have a 20yo daughter with ME/CFS. She's been ill for 8 years. She's currently doing very well -- a senior in engineering and working 10 hrs per week, too. Feel free to PM or chat me to talk about dealing with a teenager/young adult with ME/CFS.
     
    KGG likes this.
  4. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
  5. A Stevenson

    A Stevenson *****

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    Thanks, I will take a look at the site. I will PM you.
     

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