Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Doctor that prescribes vancomyacin?

Discussion in 'Lyme Disease and Co-Infections' started by Charles555nc, Nov 9, 2014.

  1. Charles555nc

    Charles555nc Senior Member

    Messages:
    527
    Likes:
    127
    MAIN question: Anyone know a lyme doctor willing to treat chronic lyme with IV Vancomyacin and/or Daptomyacin?


    Ive tried beating down my chronic lyme as much as possible,
    1. Low fat diet, DMSA, EDTA strips biofilms.
    2. Correcting zinc deficiency
    3. Correcting vitamin D deficiency
    4. Selenium, iodine, molybdenum supplementation
    5. Tindamax
    6. LDN (low dose naltrexone) and methylation supplements.
    7. Resveratrol/organic grape juice.
    8. IV antibiotics years ago.


    Just paid 850$ to see Dr Jemsek in D.C. and got an advertisement for "probiotics" and artemisin...I am/was pretty pissed off and for only 300$ more dollars I can get a phone consultation! After a couple 1000 dollars in lab tests!

    Little help? re:
    MAIN question: Anyone know a lyme doctor willing to treat chronic lyme with IV Vancomyacin and/or Daptomyacin?
     
  2. maryb

    maryb iherb code TAK122

    Messages:
    3,481
    Likes:
    3,044
    UK
    @Charles555nc
    sorry to hear that Charles, I had read a lot about the clinic, some good and some bad, it seems $30k is the price for a months stay.
    Why have you decided you want Vancomycin for Lyme? Just answered my own question.. found the following from the great JB, old stuff (1996) but who cares.

    "Twenty one patients with severe chronic Lyme disease unresponsive to more conventionally used oral and parenteral antibiotics were prescribed standard doses of vancomycin using a pulsed dosing schedule. Two patients had to drop out due to allergic reactions. Of the nineteen remaining patients, eighteen had a favorable response; in eleven the response was significantly greater than with any other agent previously used. In two such patients there was no apparent cure. None of these nineteen patients had any treatment related reactions, signs of nephro- or ototoxicity, or significant superinfections.
    I conclude that vancomycin may be a safe and effective alternative for treating patients with severe, resistant Lyme disease when other agents have failed."
     
    Charles555nc likes this.
  3. Charles555nc

    Charles555nc Senior Member

    Messages:
    527
    Likes:
    127
    Y

    Yeah that's the link I was going to post. Sounds amazing, doesnt it? Burrascano seems more cutting edge than Jemsek, or maybe I'm just too poor to get treatment from Jemsek. I felt like I could help Jemsek lose weight, the guy has gotten obese since I last saw him.

    I forgot to mention that Jemsek told me Xylitol was his "go to" item for biofilms...but I had already tried Xylitol for exactly that. So three suggestions and 3 things I had already tried...I wish they had been more honest about their practice, but I guess 850$ is too much money to turn down.

    Every place I ever been to that charges that much has been a complete scam.
     
    Sidereal and maryb like this.
  4. Hanna

    Hanna Senior Member

    Messages:
    692
    Likes:
    763
    Jerusalem, Israel
    There was a recent study about ABX that are more efficient on persistent Lyme. Among the ones that were cited, there was vancomycin.

    http://doi.org/10.1038/emi.2014.53


    Free, full text of this Open Access article (1.4MB):
    http://www.nature.com/emi/journal/v3/n7 ... 01453a.pdf

    My English is a little too weak (and I am too exhasted too) for this, so I will just recall the conclusion that I read on a post from the French Lyme forum (FranceLyme) : the more stars, the best.
    Daptomycin ****
    Clofazimine, Carbomycin, Cefoperazone, ***
    Cefotiacer **
    Vancomycin *

    @Charles555nc , very sorry for your bad experience :( . So difficult to find the right doc.
     
    maryb and Charles555nc like this.
  5. Daffodil

    Daffodil Senior Member

    Messages:
    4,811
    Likes:
    4,442
    Hi Charles. If you want to call the shots, I would suggest a Naturopath with the ability to prescribe antibiotics. I think Az allows this, and WA...maybe others.
     
    Charles555nc likes this.
  6. Charles555nc

    Charles555nc Senior Member

    Messages:
    527
    Likes:
    127
    I am perfectly willing to let the doctor decide the amount of antibiotic based on my body weight. I just want control over everything else :D is that your point? lul.

    Seems like daptomyacin and vancomyacin have actually alot of good info re persistent lyme. Not sure why this seems so hard to obtain.
     
    Daffodil likes this.
  7. kungfudao

    kungfudao Senior Member

    Messages:
    137
    Likes:
    139
    Los Angeles
     
  8. kungfudao

    kungfudao Senior Member

    Messages:
    137
    Likes:
    139
    Los Angeles
    I'm a little confused. I've always liked Jemsek, but never seen him.He does a lot with public speeches & lyme advocacy.
    How much time did you get for that money? Did he say he wouldn't give you long term antibiotics or Daptomycin?
    what about all the tests, do you have a followup? I always thought of him as the guy pickling people with antibiotics.

    I too have paid a lot of money for appointments ,but they didn't hold back on antibiotics and my appointments were 1-1/2
    hours long, They really tried to do there best. Its a tough disease. But I am still seeing another doctor now that charges much less.
    I always have a treatment plan and research with me when I go there. the Doctor usually makes a few corrections gives me a handful of prescriptions and I'm out the door. I'm just now getting my dapto and more.
    Sorry to hear of a bad experience with Dr Jemsek, But it is a little vague.But I couldn't pay that much if I wanted to. Good luck.
    Dapto, Doxy and Carbenicillin had better results than vancomycin.(cefoperazone discontinued)
     
    Last edited: Sep 1, 2015
  9. Daffodil

    Daffodil Senior Member

    Messages:
    4,811
    Likes:
    4,442
    @Charles555nc hello! how are you doing? Did you ever take vancomycin? I apologize If we have already discussed this at some point lol

    Do you think this drug or Daptomycin helps Lyme because it actually targets gut bacterial overgrowth? Enteroccocus for example?


    xo
    Daff
     
    MEMum likes this.
  10. aquariusgirl

    aquariusgirl Senior Member

    Messages:
    1,352
    Likes:
    357
    I am beginning to wonder if sequestered iron is driving theses bacterial infections?
     
  11. Daffodil

    Daffodil Senior Member

    Messages:
    4,811
    Likes:
    4,442
  12. Antares in NYC

    Antares in NYC Senior Member

    Messages:
    582
    Likes:
    1,643
    USA
    Sorry to report that I I did almost two months of IV vancomycin recently and it didn't do anything for me. I'm starting to fear I'm beyond repair. We have tried several combinations of IV antibiotics and I'm not any better. I think We waited too long until a proper diagnosis, and now my immune system is so messed up that nothing makes a difference anymore.

    Also, please, careful with the Vancomycin. It can cause irreversible deafness. Beware of that before you take it.
     
    MEMum likes this.

See more popular forum discussions.

Share This Page