Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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doctor recommendation?

Discussion in 'ME/CFS Doctors' started by fresh_eyes, Nov 8, 2009.

  1. fresh_eyes

    fresh_eyes happy to be here

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    mountains of north carolina
    So after reading lots of others' experiences, I am thinking of getting a viral and immune system workup, testing for EBV, HHV6, etc. as well as RnaseL, NK cells, etc.

    I live in North Carolina - does anyone know if Dr. Lapp uses that approach? Any recommendations for specialists who do? I'm willing to travel - apart from my neighborhood, the west coast of the US is good for me as I have family there.

    Thanks for any input,
    fresh_eyes
     
  2. fresh_eyes

    fresh_eyes happy to be here

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    Thanks, Wildaisy - found his site! Have you been a patient of his?
     
  3. August59

    August59 Daughters High School Graduation

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    Upstate SC, USA
    Dr. Black (works with Dr. Lapp) checked me for EBV (EA, VCA & NA), CMV and HHV-6. I was very high in the EBV EA IgG, EBV VCA IgG and high with HHV-6. CMV was normal. Also tested for Lymes, but the deer tick that was attached to my back right between my shoulder blades was over a year prior to testing. She used the ELISA with Western Blot if positive. My understanding is that this test is usless at that stage.

    Dr. Black is good. I liked her a lot.
     
  4. fresh_eyes

    fresh_eyes happy to be here

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    Thanks very much August59. Did Dr Black test your immune function at all?
     

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