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Doctor in Ohio

Discussion in 'ME/CFS Doctors' started by punkprinzess, Feb 13, 2012.

?

What kind of doctor do you see?

  1. Just a general practitioner

    0 vote(s)
    0.0%
  2. A specialist in CFS/ME

    50.0%
  3. Other form of specialist

    33.3%
  4. No one; I treat myself

    16.7%
Multiple votes are allowed.
  1. punkprinzess

    punkprinzess

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    Athens, OH, USA
    I'm new here, and am looking for a doctor, preferably a specialist in ME, in south eastern ohio. I'm currently in college at Ohio University, which is in Athens. I could travel to Columbus or Cincinnati to see one as well, if need be.

    I've been sick for around 10 years, but was only diagnosed officially with CFS in December. I am seeing Dr. Guyer in Indianapolis, which is where I'm from. I no longer live there anymore though, and only go back to visit family. Dr. Guyer is a specialist in molecular medicine, and as such isn't as informed about ME and all the many complications that seem to go along with it (as I'm learning) that I feel a specialist might would be.

    My GP gave up on me years ago, and I don't really have a support network. I'm still learning about everything, and looking for answers. I really, really need to find someone who can do that.

    Thanks in advance!
  2. Merry

    Merry Senior Member

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    Columbus, Ohio, USA
    Hi, punkprinzess.

    As I have not seen a doctor for years, I can't, I'm sorry to say, offer help, but if I run across any information, I will pass it on to you. A CFS support group used to advertise meetings in my neighborhood; I'll look for an ad and see if it includes a contact number.

    I just wanted to welcome you to Phoenix Rising and tell you that I attended Ohio University in the early 70s and loved living in Athens.

    Best of luck to you.
  3. caledonia

    caledonia

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    Cincinnati, OH, USA
    There's not much happening in Cincinnati either, although I do have a naturopath that i've worked with for about 6 years. My environmental medicine specialist is in Akron. He is the one who diagnosed me with CFS, chemical sensitivities and thyroid problems when nobody else had a clue.

    If you have FM then Hal Blatman is supposed to be excellent.

    Slayadragon has gone to Dale Guyer and has praised him quite a lot. I'm surprised to hear you say he's not informed about ME.

    You can PM me for more details if you want.
  4. SpecialK82

    SpecialK82 Senior Member

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    USA
    I don't know of much around Ohio. Besides the docs already mentioned, there is also Dr. Lerner in Michigan. http://www.treatmentcenterforcfs.com/

    His specialty is really treating underlying infections like EBV, CMV or HHV-6. He treats very aggressively with anti-virals. His philosophy is that EBV like infection is the cause of CFS. He doesn't treat other more broad issues, for instance, he doesn't push supplements etc.

    Welcome to the site, glad you are here!! Make sure to stay connected because I know Phoenix Rising is working on an easy-to-navigate "Good Doctor List". People will be able to put in their doctors and give them detailed reviews.
  5. Merry

    Merry Senior Member

    Messages:
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    607
    Columbus, Ohio, USA
  6. aquariusgirl

    aquariusgirl Senior Member

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    Sorry i can't help....but if you have time curious to hear more of your experiences with Guyer.
    thanks
  7. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Poll: Internal Medicine, he has helped me tremendously in the last 2 to 3 years, ill 9 years. Ouch!

    GG
  8. punkprinzess

    punkprinzess

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    Athens, OH, USA
    Hey guys, thanks for all your responses. Got caught up with school and typical foggy life.

    caledonia - I was merely wondering if he wasn't as informed as someone who's practice centers around ME research. From what I've observed, new info seems to be coming up a lot, and it seems it would be hard for one doctor to keep track with all the particularities of each disorder he covers.

    aquariusgirl - Dr. Guyer was the first person to actually have the guts to run a plethora of tests to see what the hell was going on. He ordered a panel of about 35 tests (the phlebologist drawing was impressed lol) which is when we discovered my virus levels were skyrocket high. [This in particular has made me interested in pursuing a long-term anti-viral treatment.] Guyer's strategy was interesting, as he started me on IV therapies and supplements before he even ran any tests. As of now, I'm supposed to be taking around 55 pills a day (I can pm the list of what if you'd like). So far, I admit, I have failed completely in doing that. It's absolutely daunting, and for some reason the vegetable (as opposed to bovine) coating on many of the pills makes me gag.
    Personal feelings - Getting handed dozens of new medicines that didn't come with ANY possible warning information scares me a bit. There's going to be risks with every treatment, but it's always nice (I think) to know what they are and weigh the decision. Guyer himself is a nice guy, a little odd, but makes you feel like he actually cares. He was actually excited about my case - and apologized for that - because it was, and is, such a mystery. It's certainly a change from the doctor's who just give up. Everyone in the office is very nice, and the office itself is insane. The entire back area is like a mini park- complete with pond, bridge, tree swing, paths, etc. I have no idea why it's there, but it's very pretty and nice if you have a wait. Any more questions, feel free to ask!
  9. punkprinzess

    punkprinzess

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    Athens, OH, USA
    Thank you everyone for your welcomes!
  10. Bescheurt

    Bescheurt

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    Also in Athens

    Punkprinzess,

    I also live in Athens and have been struggling to find a doctor and deal with chronic fatigue. Contact me and maybe we can exchange notes and experiences. Maybe we can each help the other to find some succor. Bescheurt@hotmail.com. I've been to OSU, Cleveland Clinic, and had experiences with Lyme doctors.

    Jason
  11. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,031
    Likes:
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    Concord, NH

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