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i crash very often,physically and mentally,how do you cope, do you guys take any medication?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Indeed, even trying your suggestion first which can be cheaper.What @Alvin2 listed plus whey protein/amino acids and rest.
i crash very often,physically and mentally,how do you cope, do you guys take any medication?
What @Alvin2 listed plus whey protein/amino acids and rest.
But there is, many things have been suggestedMy attitude is: 'I know it's going to happen. There's nothing I can do about it. Life sucks.'
I agree but when you conclude nothing can be done and stop trying you won't discover anything. If i had stopped trying then i would not be taking what i am currently on and would not be able to comprehend this conversation at all (my mental function was very bad a while back, approaching vegetable level bad, i'm still ramping up doses and experiencing beneficial and side effects).Alvin2, the problem with 'things that reduce PEM' is that they only seem to work for some people, some of the time, and usually only to some extent. Also, when I read about someone's drug and/or supplement cocktail that 'works for them', I can't help thinking about how similar it sounds to people claiming the same wonderful improvements from magic crystals, homeopathy, etc. Anecdotal claims aren't enough to make me make the effort to try the suggestions. If (whatever suggestion) actually worked somewhat reliably, I expect some researcher would have verified it by now, or at least there would be a lot of members on this forum agreeing that it works well. I don't recall coming across any PEM-reducing suggestion that a majority of people agree works (except for avoiding PEM triggering).
When I want a PEM-free day, I make the effort to avoid known triggers if I can. Otherwise, I do known PEM-triggering activities fully aware of the consequences. Some activities, such as putting on snow tires, as I did yesterday, just have to be done, even if it makes me feel lousier today.
This is totally your decision to make and not at all unreasonable, what i am saying is telling others not to try is not a good idea because they may find things that had no effect on you helpful.I do try things. I've tried quite a lot of things. Some, such as LDN were supported by a significant number of people saying that it worked for them, plus actual research evidence (although not ME/CFS testing). Others things I tried were things that seemed logical to me: immunosuppressants and mitochondrial-influencing compounds. I've just given up on (well, never really got into it) trying things that lack what I consider significant supporting evidence. Yes, that means that I might miss out on something that works, but I'm not willing to spend the effort and money on trying every plant and fungus in the Brazilian Basin just because 'maybe something will help'.
I have also had many disappointments, so now i try strategically, but without the ones i am taking now i would not be typing this and completely unable to leave the house, not that i am great now, i can go out occasionally only and i burn out easily and my mental functioning is still less then a couple years ago.Of the many things I've tested for my symptoms, I've only found two things that still work reliably, two that I'm not sure still do anything significant, and two that only worked for the first couple of weeks. I'm open to trying things, but I'll wait for convincing evidence. Disappointments are unhealthy.