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Do you have these symptoms ?

Discussion in 'General Symptoms' started by Mayna, Mar 19, 2013.

  1. Mayna

    Mayna

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    MeSci I'm definitly reading it , thanks - hope it's not too long hahah :)

    Dmitri : the poundings are in my neck, and in back of my head, like a line between the ears.

    leela : Unfortunatly I don't live near Grenoble! I'm seeing an osteopath tommorrow though, had an appointment really fast fortunatly !
     
  2. taniaaust1

    taniaaust1

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    I want to second what leela said. Thou one can get a much clearer view if it's ME/CFS or not by the PEM.. not all cases do have this happening at first. I didnt have PEM for a least the first year (I just had on and off bouts of bad viral symptoms for first year and then after that severe hypersomnia. Ive no idea at what point the PEM came in but it certainly wasnt in the first year of my illness).

    Anyway who doesnt have clear symptoms of what this may be.. needs to stay open to what the illness could be but the PEM can certainly help to know one has a right diagnoses. Be wary otherwise of wrong diagnoses.
     
  3. taniaaust1

    taniaaust1

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    Given what you've said about your cold. I think it is quite questionable if a 3 day cold gave you ME/CFS and hence are thinking its very likely to have just been coincidental.

    Colds are not a common trigger for ME/CFS and besides that often the illness which goes on to trigger off someones ME/CFS is often a bad one eg Studies have shown that the more severe a persons mono (EBV) is the more likely they are to end up with ME/CFS..severity plays a part.

    There is some relationship between this illness and the degree of sickness one had. The illnesses which seem to be triggers to ME/CFS are gastro ones with gut involvement, EBV, CMV, Ross River Fever, Giardia

    A 3 day cold doesnt really show signs of immune dysfunction.

    From all you said, Im very much doubting that you have ME/CFS.
     
  4. Creekee

    Creekee Senior Member

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    Neck pain and fatigue are also typical of Lyme Disease...
     
  5. Mayna

    Mayna

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    Hi

    So i went to an osteopath. He said that the pounding in head are linked to the fatigue, because I try harder to focus and the muscles are tense. Idk. He also tested me with an oligoscan (i had never seen it before, it is a device to see if you're intoxicated with heavy metals : http://artdentaireglobal.wordpress.com/ )
    @Creekee Well, i tested for lyme as well-i tested for a lot of things, and i don't have it. Went to a psychiatrist too, no depression.
    So, this is a fatigue somehow triggered by the cold, but I don't see any testimonies of post-cold fatigue, @taniaaust1 it is true. But it was during an exam period, so maybe the chronic fatigue is a result of the cold+the stress that triggered a dysfonction.

    It is frustrating because there are so many causes of fatigue. But if other people heal, there's room for hope ( optimistic speech ..haha.)
     
  6. leela

    leela Slow But Hopeful

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    I have never understood how anyone distinguishes between a cold and a flu? If ther is really any difference?
     
  7. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I use it as a reference book rather than reading it from start to finish - like an encyclopaedia.
     
  8. Mayna

    Mayna

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    I think you have fever when you have a flu , and aches ? I never had flu......
    I was given Laroxyl against the pounding in head, has anyone tried it?
     
  9. taniaaust1

    taniaaust1

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    Exam stress with a cold. now that would be more of a ME/CFS trigger. Many get ME/CFS while at college and exam stress and the too many late nights which come along with having to do exams, can be one of the triggers for some of us including it was for myself.

    There was recently a study done (not a ME/CFS study) and someone posted it at this site on how a very short time of not getting enough sleep affects the immune system negativity. If Im remembering correctly the immune system was affected in less then one week.
     
  10. taniaaust1

    taniaaust1

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    Flu generally has fever, hot and cold chills, aches and pains with it too, not just a cough and snotty nose which a typical cold has..
     
  11. Mayna

    Mayna

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    Does anyone feel the muscles of their neck tensing up against their will? ( like a constant tension ? )

    I wonder if every body feeling tired inevitably feels a tension in neck ? :thumbdown: (it is unbearable, i can't focus with that)

    Thank you... :)
     
  12. Dmitri

    Dmitri

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    I always experience this this, but tension and pain projects more into the sides of head. When I get up, I get a rush of pain and pressure in these areas, often accompanied by blackness in vision. Does this happen to you? Rotating neck is hard too, if I do it too fast, I get a sudden rush of heat and pain going up my neck and into head.
     
  13. Mayna

    Mayna

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    Hi Dmitri,

    No, I don't have any headache. What you experience is tension headache, am I right ? I have read this is due to an important tension in the neck muscles...

    My neck tenses up every time , particularly when i am motionless. At this moment it is more difficult to rotate my neck.

    ( I hope i am clear enough :) )
     
  14. Dmitri

    Dmitri

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    I was asking talking about neck symptoms in your case. I think my tension headaches are caused by neck. I noticed that it's always more difficult to rotate my neck to the left than right. The way it's positioned during sleep is crucial. I remember testing a large amount of pillows to find one that leaves the least symptoms after waking up.

    Sleeping on stomach produces the worst symptoms, probably due to how neck is held in disarray. It typically causes the worst neck/head tension symptoms on the following morning, and very deep blackness in vision after standing up. The pain fluctuates throughout the day, typically the worst in first half of the day.
     
  15. Mayna

    Mayna

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    have you try something to relax the muscles?
     
  16. Dmitri

    Dmitri

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    The only relief I can think of is quite insignificant. Warm water via shower slightly eases tension. Pressure on the areas of pulsation can also help, f.e wearing a tight hat to lower the pain on the sides of my head.
     
  17. Tristen

    Tristen Senior Member

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    I had those symptoms and they persisted for about 2-3 years. The neck pain and stiffness were by far most pronounced. I would say severe. One would think some form of meningitis.....I would probably have done even better on the anti-viral treatment had I done it right away, rather than years into it. But finding a doc willing to Tx was the problem.
     
  18. Mayna

    Mayna

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    Hi, I tried a drug called tetrazepam and it improved my symptoms of stiffness of the neck. But it has a sedative side effect so i only take it before going to bed.. Dmitri have you ever tried something similar ? It's not miraculous but it helps a bit
     
  19. Dmitri

    Dmitri

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    I am unable to take any drugs, so unfortunately not. I wonder how pain relief would work in such an instance e.g would pain be numbed while pulsation still persists?
     
  20. Xandoff

    Xandoff Michael

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    Tristen,

    Please watch this video on youtube by renowned ME researcher Dr. Kenny De MeirLeir, he is out of Belgium and although all Belgians speak English this is in Belgian with subtitles. He uses GcMAF to treat patients of which I take. This video was the first to allow me to understand my pain. Hope you like. It's abpout seven minutes. Not Bad.

    http://www.youtube.com/watch?v=3X5yl1MO0jM&feature=share&list=PLsQ0FZQ_5JXQPVDLmt1EOgOlf2PAg6TFW
     

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