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Do you have ME/CFS with or without sore throat?

Discussion in 'Immunological' started by Tally, May 10, 2012.

?

How often do you have sore throat since you got ME/CFS?

  1. Almost never

    16 vote(s)
    23.2%
  2. Once or twice a year

    8 vote(s)
    11.6%
  3. More than twice a year

    45 vote(s)
    65.2%
  1. rockymountainmama

    rockymountainmama

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    New Mexico
    Dear #Merry

    Since I started the Simplified Methylation Protocol last September, I have had few sore throats. I can't remember when I had the last one and would have to read through my medical diary to give you a more accurate account.

    I also have chronic right-sided sore throats (Me/CFS since 1996). Has the Methylation Protocol still kept your sore throats at bay?
    Thank you!
     
  2. RebeccaRe

    RebeccaRe Senior Member

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    Massachusetts
    I also have sore throats most of the time. It's not a bad sore throat, like when you have strep or the flu. It's usually mild--it feels as though I went to a Red Sox game the previous day and had been cheering a bit to much. Usually it's worse when the rest of my symptoms are also acting up.
     
  3. rockymountainmama

    rockymountainmama

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    New Mexico
    Dear @Merry

    I also have chronic right-sided sore throats (Me/CFS since 1996). Has the Methylation Protocol still kept your sore throats at bay?
    Thank you!
     
  4. *GG*

    *GG* Moderator

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    Concord, NH
    Same here, just not into baseball ;)

    GG
     
    RebeccaRe likes this.
  5. BadBadBear

    BadBadBear Senior Member

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    Rocky Mountains
    Continual sore throat until starting Famvir.
     
  6. Lipac

    Lipac Senior Member

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    michigan
    DISCLAIMER: I have BAD MCS. I get a sore throat from anything perfumed, in about a minute. Also paints, propane, some cooking smells, exhaust on roads,,,, so I gets lots of them.
    I need a bubble in the desert.
     
  7. rockymountainmama

    rockymountainmama

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    New Mexico
    Dear @BadBadBear ,
    Sore throat is a big big deal for me, I'm interested what the doctor gave you Famvir "for" (my doc will give me just about anything, but there has to be a reason), was it for EBV? (I have IGM+)

    SIncerely, RMM
     
  8. Mariesak

    Mariesak

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    New Salem, Massachusetts
    I have exactly the same story!
     
  9. BadBadBear

    BadBadBear Senior Member

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    Rocky Mountains
    Hi RMM, I seem to have chronic EBV, no IGM but my EA numbers stay high. I have been using Famvir + Celebrex for about 3.5 months and the sore throat resolved fairly soon after starting the meds. My jaw glands are not nearly as swollen, though the right side has not reduced as much as the left.
     
    rockymountainmama likes this.
  10. rockymountainmama

    rockymountainmama

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    New Mexico
    Dear @BadBadBear,

    I JUST EDITED THIS!

    I am highly interested in your Famvir + Celebrex protocol, do you know where this treatment originated (I like to research before trying)? (OOPS I JUST FOUND OUT THAT IT IS PRIDGEN) Did your local MD/ND agree to prescribe this?

    My jaw glands are generally not swollen, they get hard and painful instead.
    Thank you.
     
  11. BadBadBear

    BadBadBear Senior Member

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    Rocky Mountains
    I see an Integrative MD and she is letting me try a protocol similar to Pridgen. I take more Famvir @1g per day, and less Celebrex @200 mg per day.

    She is cautious about overloading my liver, but I wish the Celebrex dose was higher. I didn't realize how much pain I had until it was gone. Now the Celebrex wears off between lunch and dinner and it hurts! I try to remember to take boswellia, baby aspirin, and propolis at lunch and that works similarly to Celebrex for me.

    My glands get swollen, hard, and painful. Feels like a walnut. Now occasionally it feels like I might get a sore throat, but I don't. Just have that feeling of throat congestion or something but it passes.

    I would have sore throats previously for months and months at a time, they'd clear for a few weeks or months then settle in again.
     
  12. rockymountainmama

    rockymountainmama

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    New Mexico
    Dear @BadBadBear,
    Thank you so much for the helpful info. I too see an integrative MD, who is also always worried about my liver! I have to try something, QOL is pretty bad with all this throat pain. Although not a happy situation, I've adapted to my 50% life for these 21 yrs, as I'm sure those of us with long term CFS have as well. I do feel that if I can target the infection/inflammation it will make a dent in the fatigue as well.
    Sincerely, RMM
     
    BadBadBear likes this.
  13. lnester7

    lnester7 Seven

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    USA
    That was never a symptom of mi e.
    Then like year 10 I had it for a few months( a relapse phase) then not have it at the moments either
     
  14. manasi12

    manasi12

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    My illness started with sore throat. Now since last two years , I have sore throat and mild fever for almost 5-6 months in a year . It goes away with antibiotics for a few days and again comes back. If I dont take antibiotics , fever doesnt go away.
    Apart from CFS , I have few autoantibodies too. Any suggestions please as doctors are clueless as usual..
     
  15. percyval577

    percyval577

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    I used to have a sore throat feeling only during summer. Than I found out that eating some more salt (in chips for example) helps.
    I always had the idea that Epstein-Barr-Virus liked to reappear (so, maybe it´s not common). By accident I found out that onions are good. I eat them with meet or sausages, and as much onion as possible, I swear!
     
  16. andyguitar

    andyguitar Senior Member

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    South east England
    Sore throat can be fungal in origin and at the same time you could get the same symptoms from bacteria/virus. So if you have had treatment for viral/bacterial sore throat, and it seems to help a bit, you might still have a fungal sore throat.
     
    manasi12 and percyval577 like this.
  17. percyval577

    percyval577

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    I´ve stopped eating sugar, and after a mysterious slime production from above the tung, the doctor found only very few candida albicans (after further selftreatment especially with tabasco). It was not found anymore three weeks later after treatement with only 25g nystatin, nor any bacteria of interest.
    Of course I am not convinced anymore from anything I am told now. If I should be a doctor, I should have asked myself, if there might be anywhere else a candida infection.
    Anyway, I can get a sore throat now (not just the very one that used to appear during summer) quit immediatly from drinking beer without taking vit C. On the other hand, drinking none beer and/or having no sore throat doesn´t change my state of mind (in these days, but in days I felt better I mostly didn´t like to drink any alcohol, feeling bad from it).
    So I am curious what´s going on there and in the whole.
    Some fungi, that would make sence. I need to watch further on sugar issues.
     
    andyguitar likes this.
  18. Sundancer

    Sundancer Senior Member

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    Holland
    first half year constantly, then it sometimes disappeared.
    Now only with bad PEM and when whatever virus jumps into my body, or emotional stress.
    so, with overload
     
  19. andyguitar

    andyguitar Senior Member

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    South east England
    No suprise to me that onions help @percyval577 as they are a potent anti-fungal. There are more than one species of fungi that can cause sore throats, and many other symptoms, so the test for candida wont tell you if you have them. Same goes for Nystatin. Not effective on all species of fungi.
     
    percyval577 likes this.
  20. andyguitar

    andyguitar Senior Member

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    South east England
    Garlic can be pretty effective to. Or as a less smelly alternative the herb Mhyrr as a mouth wash is pretty good.
     

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