1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

Do you have crimson crescents?

Discussion in 'Immunological' started by Robin, May 22, 2010.


Do you have crimson crescents?

  1. I have them and I tested positive for XMRV.

    5 vote(s)
  2. I don't have them and I tested positive for XMRV.

    2 vote(s)
  3. I have them and I tested negative for XMRV.

    4 vote(s)
  4. I don't have them and I tested negative for XMRV.

    0 vote(s)
  5. I have them and I have not yet been tested for XMRV.

    68 vote(s)
  6. I don't have them and I have not yet been tested for XMRV.

    10 vote(s)
  1. HopingSince88

    HopingSince88 Senior Member

    Hello Judderwocky,

    I don't have the wormy thing. But welcome to the forums. We can be funny from time-to-time, in spite of our illness.
  2. judderwocky

    judderwocky Senior Member


    im still kinda reacting to these... i keep runing to the bathroom to see if they are still there.... the funny thing is, ive known they were there the whole time... but i never really recalled what my throat looked like back there before i got sick... when i got sick i knew it looked more red... but i assumed it was just allergies or something... ive had some breathing issues off and on... but i take NAC which clears a lot of mucus and i think it helps with my breathing.... i dunno
  3. spindrift

    spindrift Plays With Voodoo Dollies


    A warm welcome to the forum. I always enjoyed your posts on DS and am happy to see you found your way here.

  4. HopingSince88

    HopingSince88 Senior Member

    DH often means 'Dear Husband' so maybe DS means "Dear Son"? just a guess
  5. judderwocky

    judderwocky Senior Member

    lol... i spent a rediculously long time trying to get close to the mirror and point the flashlight in my face... then i realized i could just point it into the mirror and it would reflect back... rofl
  6. cfs since 1998

    cfs since 1998 *****

    I have them at the back of my throat and a few in my mouth as well.
  7. awol

    awol *****

    cfs since 1998,

    The ones that are just in front of the tonsils on each side are the crescents. Anything else is something else - only two were part of the pattern recognized in CFS patients by Dr. Cunha.
  8. Boule de feu

    Boule de feu Senior Member

    Ottawa, Canada
    Thank you for this and for the awesome pictures! I have learned something new today and I thought it was not possible anymore (after 4 years of researching and looking for CFS facts). I have just joined this group and I'm pretty happy I have done so. I'm from Canada and I am surprised that my doctor/many specialists have never mentioned the CC's in my mouth (present for at least the last five years). Afterall, the Canadian Consensus was written here. Maybe my doc does not know about them or thinks that everyone has them, too?

    I'm surprised that there are only a few doctors aware of this and noone else is picking it up. It is probably not specific enough and could pinpoint to other diseases as well.

    Could anyone who has a perfectly normal throat post a picture, as well? It would be so appreciated!

    I'm pretty sure my daughter has them. She is 10, and already shows signs of CFS/fibro. Each time, she gets exhausted, she ends up with cold sores on her bottow lip. They get bigger and bigger. It's probably related to her immune system that is not working properly. My husband is also getting sick. It's hard to tell - he is fine one day and not the next. For the first time, last week, he told me: "I believe I have what you have." (and this time around, he was not joking!). It kind of made me feel good since I had the conviction (for the first time) that he thought my condition was genuine. I will have to check my son's throat. He is very athletic and ends up pretty dead (needs a couple of days to recuperate) after a day of intense biking.

    Since the XMRV discovery, I am starting to think that I have infected everyone. I'm really worried about that. But, how could I have prevented this from happening if I didn't know what caused it in the first place?

    By the way, my CC's are bright red, inflamed. I've had a sore throat, earache, headache (non stop) since November 2005. Since we could not find anything wrong, my doctor gave me some benzydamine HCL to numb my throat. It does not work well, and lately, it burns my throat more. I'll have to find something else that works. Anyone else dealing with the same issues? Solutions?
  9. Hip

    Hip Senior Member

    I think I will add a picture of my own crimson crescent here (in the singular, because I only have my crimson crescent on one side of my throat):

    The Crimson Crescent In My Throat:
    Crimson Crescent 2 small.jpg

    The location of this crimson crescent exactly coincides with the area where I had the herpangina sore throat from the respiratory virus I caught a decade ago — the virus that I am fairly sure led to my ME/CFS.

    Herpangina sore throats are a particular type of sore throat that center on the back arch of the soft palette (the palatoglossal arch), either on just one side, or on both sides of this arch.

    Google images of herpangina sore throats: here.

    When I caught this virus, I only experienced the herpangina on one side of this arch in my throat — the same side where you now see this crimson crescent, which thus appears to be the long-term ongoing after-effect of my original herpangina.

    So to me it seems likely that crimson crescents are the ongoing long-term effects of the original herpangina, as my single crimson crescent appeared exactly on the side of the throat where my herpangina was centered; but on the other side, where there was no herpangina, I have no crimson crescent.

    This herpangina-into-crimson-crescents phenomenon may offer further evidence that the original virus remains chronically active in ME/CFS patients.

    Herpangina sore throats are generally only caused by certain viruses of the Enterovirus genus, namely coxsackievirus B, coxsackievirus A16, and enterovirus 71.

    This begins to add up, as ME/CFS is strongly linked to coxsackievirus B.

    (More rarely, herpangina can be caused by echovirus (also from the Enterovirus genus), parechovirus 1, adenovirus, and herpes simplex virus). Reference: here.

    I've had my tonsils out, by the way, which lends a different appearance to the throat.

    The white tongue coating you see is not thrush, incidentally, but geographic tongue (migratory glossitis). This tongue coating appeared after I caught the respiratory virus that led to my chronic fatigue syndrome, and is now a permanent symptom. There's very little research into geographic tongue, but I know someone who developed a similar persistent white tongue coating from a chronic viral infection similar to mine, and who put some of the white coating under a microscope, and was able to observe that the white coating was made of dead macrophages. So there is apparently some uncontrolled inflammation going on, if all these macrophages are rushing to the tongue area.
  10. Meggydoe


    i have both crescents and i have hypothyroidism and tested positive for Anti-TPO. could they be somehow related. i dont know what is XMRV and my ENT doctor and my Endocrinologist would say my mouth is fine. some days i feel the sore some days i dont. i just gave birth a year ago and they keep saying that grave's disease is common to flare after giving birth.

    im scared and would love to hear your thoughts!
  11. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

    Czechosherlockia, USA
    I have it both sides, plus the ever swollen submandibular lymph nodes to go with it.

    The only thing I found on it, aside from CFS and Lyme, says:
    Marlène likes this.

See more popular forum discussions.

Share This Page