Do we think CFS affects the heart or not ?

[justy]

I have had palpitations for many years as part of my ME. recently dx with MCAS it seems palpitations are also common in MCAS. Also found last year to have a MVP with regurgitation - missed by the NHS and only picked up by my M.E specialist. But then I also recently got an EDS dx.

who knows if all these things are linked and ultimately to do with my M.E or not. Suspect I have autonomic dysfunction but cardiologist refuses to test for it. I feel worse and worse the longer I stand for, best laying down or sitting with legs up. I sweat profusely if I am made to stand and speak for more than a couple of minutes.

 

[lansbergen]

who knows if all these things are linked and ultimately to do with my M.E or not.

I think it is. In hindsight I think the sweating is a good sighn. I did not know that at the time it happened but now it makes sence to me.

 

[justy]

I think it is. In hindsight I think the sweating is a good sighn. I did not know that at the time it happened but now it makes sence to me.

in what way is sweating every time you stand up a good sign?

 

[lansbergen]

in what way is sweating every time you stand up a good sign?

Not only when you stand but with every effort.

Even the nightsweats many report are a good sighn. There is an old saying, sweating is a sighn the body is fighting the intruder.

 

[daisybell]

Not only when you stand but with every effort.

Even the nightsweats many report are a good sighn. There is an old saying, sweating is a sighn the body is fighting the intruder.

It's also a sign of autonomic issues....

 

[anniekim]

Cheney's work - A Cardiac Marker for Disability in Myalgic Encephalomyelitis

https://docs.google.com/document/d/1-72Kb14gKC3qU5Il8DEljeGliGgfpOHpUhW6eBuFw-U/mobilebasic