Hi everyone, I read through quite a few of the threads & i so often read, '"i did this when i wasn't so ill" or "i used to do that when i wasn't so severly affected" etc etc. This gives me the impression that over the years a fair number of you seemed to have got worse, am i correct? My 16yr old daughter has been ill for half of her life now & recently she has definately been struggling more. She has this problem i've spoken about before when she suddenly lost over 3st in weight over a year, her nausea is a real problem at the moment (original virus that triggered the ME was a sickness one). Her period pains have got so bad she has to go in the bath in the middle of the night to try and help it a bit. She seems to have moved backwards, even though we have done everything in our power to give her body all the rest it may need i.e no school. Or are there many of you who are getting better, if sdo after how many years?