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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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Do people feel better in cooler temperature?

Discussion in 'General ME/CFS Discussion' started by Legendrew, Sep 6, 2013.

?

Do you feel better in colder weather?

  1. Yes much better

    24 vote(s)
    46.2%
  2. Yes but only a little

    10 vote(s)
    19.2%
  3. Neutral - I feel the same as always

    0 vote(s)
    0.0%
  4. No I feel worse in cold weather

    18 vote(s)
    34.6%
  5. I feel better but pain symptom is worse

    0 vote(s)
    0.0%
  1. Raindrop

    Raindrop Senior Member

    Messages:
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    Likes:
    109
    USA
    Fredrictoo:
    Oh, my....You might also try to get a PORTABLE AC UNIT (just a hose goes from a mount on the window. It's easy
    and it's portable. Worth any price at ALL!! Today is the first day cooler where I live in 2 weeks, but I still can't get
    out bc I didn't sleep all night (another horrid problem). It makes me feel very good that you finally met someone in me that CAN finally understand how bad it is for you - the heat. I often feel like I can do very little in this world for anyone being this ill. At least I have given you validation for what is very very REAL. Don't mind anyone else - use 7 fans like I do and one with a spray mister on it (cost $10 at Bed B and B) WITH a fan - hand held.Get ALL the Props that you need. That is how I survive. Fall is coming soon!
    Fredricktoo and rosie26 like this.
  2. wanttorecover

    wanttorecover

    Messages:
    17
    Likes:
    14
    New Zealand
    I have replied as yes I feel much better in cold weather as the rest of my symptoms become a lot more manageable or like another member stated it is probably more to do with the fact I feel so much worse in summer in the last few years I have had severe heat intolerance which causes all of my symptoms to flare up and makes me seriously ill.

    Alongside I have also developed a peripheral neuropathy with measurable decrease in nerve conduction speed on a test, but I don't have any lesions so they are fairly sure I have ME.

    I would be interested in hearing from other people who have had ME most of their lives and had a sudden worsening of symptoms it is really starting to freak me out a little. I have had less temperature regulation since childhood when I had a major viral infection and low blood pressure and some autonomic dysfunction.

    Can anyone explain to me what causes the het intolerance I assume it is a different mechanism than MS?
    rosie26 likes this.
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    2,642
    Likes:
    2,849
    Cornwall, UK
    Have you seen the messages about uncoupling on page 1 of this thread?
  4. wanttorecover

    wanttorecover

    Messages:
    17
    Likes:
    14
    New Zealand
    Just checked it out thanks for the tip.
  5. Antares in NYC

    Antares in NYC Senior Member

    Messages:
    127
    Likes:
    141
    USA
    Just wanted to share my experience, which is quite different. I was raised in warmer climates, and my CFS started soon after I moved to the cold and heavily polluted northeast (Boston, NYC).

    I personally feel worse in cold weather. Since I got CFS, every winter has been a little bit tougher on me. Every brutal winter brings me a host of new issues, pains, infections, and a decreasing tolerance for cold.

    Not sure why, but these northeastern winters kick my rear end. It may be the decreased NK function that leads me to major chest colds in the winter. Or maybe it's the recently observed similarities between ME/CFS and MS. As I understand, MS patients often do much worse in colder climates. Maybe this is an element common to autoimmune syndromes.

    Just my two cents. Yes, I have seriously been considering a move to a warmer state, as much as I love NYC. This city can be a serious pain, but it's difficult to give up.
    rosie26 likes this.
  6. roonie

    roonie

    Messages:
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    Likes:
    5
    in the early days of my illness i tried sleeping in a tent as every time i would enter my house i would go down hard and fast.To this day ive always thought that if i could only get somewhere safe, that i would recover. A couple years ago i made it down to the USA...(im from Canada ..eh)...we went to disneyland etc. but it was not until i made it to the sea shore in Sandiego Calf. that i huge weight had been lifted from my body. I think due to the clean air beside the ocean as we stayed right in an oceanside hotel. If a person looks into the Marshall Protocal we see that they have best success with killing the bad bugs while in another part of the country. Lyme patients also change when they visit different parts of the world. Just my two cents worth..........eh

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