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Do people feel better in cooler temperature?

Discussion in 'General ME/CFS Discussion' started by Legendrew, Sep 6, 2013.

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Do you feel better in colder weather?

  1. Yes much better

    25 vote(s)
    47.2%
  2. Yes but only a little

    10 vote(s)
    18.9%
  3. Neutral - I feel the same as always

    0 vote(s)
    0.0%
  4. No I feel worse in cold weather

    18 vote(s)
    34.0%
  5. I feel better but pain symptom is worse

    0 vote(s)
    0.0%
  1. Raindrop

    Raindrop Senior Member

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    I totally identify with your being "a different person from day to night". I am 75% better at night and that
    only makes my sleep-shifted hours worse (go to bed ungodly late early AM). It seems like the world
    is totally opposite. Just when everyone is getting tired and going to bed it is then that I can do anything.
    Although, have noticed at around 8pm am getting tired and then it passes. Thinking it may be akin to
    most people's "afternoon slump". Also when it is COOL I have way more energy and can think better as well.
  2. Grampus

    Grampus

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    Hate the heat and humidity! Sucks because I am in Houston and summer doesn't want to quit! I feel so much better when I visit cooler and dryer locales.
  3. xxRinxx

    xxRinxx

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    Paducah, Kentucky
    I'm exactly like that too! I have to eat every 2 1/2 hours or else i'll be flat on my face with my heart rate a mess. I eat a gluten free, low sugar, good fats diet and with limited grains, and still, the weight stays. its so frustratttinggg. I can't exercise now because its too hot and my POTS has been acting up, so stuck in that limbo @.@

    And I agree with the day to night thing..I feel muuuchh better at night, but i'm forced to wake up early in the morning now and i feel much worse. I felt the best when i woke up at 2pm, and went to bed at around 6 or 7am, but definitely can't do that schedule anymore. So i'll just sit under the fan next to the air vent, hahaha.
  4. Fredricktoo

    Fredricktoo

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    Clearwater, Florida
    Thanks for the suggestions Raindrop! I live in a condo with an airconditioner on the roof. I know it's up there because you can see the little dot on the roof on Google earth. It's my air conditioner but I can't put anything on the roof per condo rules. One of the biggest businesses in Fl is air conditioner maintenance. They come fairly quickly and I've only need them once in three years. My wife and her friends do all of the outdoor chores and shopping. I'm bed bound with a few bulging discs and a compressed vertebrae. I've also had some minor strokes back in the 90's post anesthesia. I'll do anything necessary to keep from overheating. The feeling of sickness, weakness, and mind numbingness that I experience in the heat are as I mentioned not believed by healthy people. You're the first person in 13 years I've met that can relate to how bad I feel. Do exactly what you must to feel well and don't worry about what other say or think. It's not worth it. We're shunned by the healthy and not understood by the medical community. It's such a relief to know that I'm not the only one like this. Not that I would ever wish this on my worst enemy and I wish that there was a cure, not just treatment but a cure for this hellish disorder.
    rosie26 likes this.
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    There is increasing evidence that it is carbohydrate that makes people overweight, not dietary fat. When I acted on this and threw 'low-fat' out of the window (metaphorically-speaking, of course!) and reduced grains and sugar to a minimum as well as taking gut-healing and muscle-building supplements, the weight fell off. Nothing else has ever worked for me. It also stabilises blood sugar.
    Mij likes this.
  6. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    I almost never get PENE/PEM the day after over-exertion. I usually feel no different. It does not hit until at least 2 days after the exertion.

    The reason why many of us find that our energy levels go up in the evening could be abnormal diurnal cortisol patterns.

    In healthy people, cortisol is high on waking and low in the evening. Some research has found the opposite in ME/CFS, for example this paper (maybe try to ignore the fact that the journal is called Psychosomatic Medicine!:rolleyes: ).

    Cortisol has an impact on energy levels, which this page explains.
    Crux likes this.
  7. peggy-sue

    peggy-sue

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    Scotland
    MeSci, I've swung betweeen BMIs of 19 and 30 too, and I'm 5'1". I suppose we're both bonsais. :D
    I've lost about 30 lbs over the last 3 years.
    Weight started piling on when I had to start taking an antidepressant.

    I do a sort of 5/2 diet, (as it is now being called). Just having a few days here and there where I eat very, very little.
    It works for me, but would not be any good for folk who need to eat regularly. :cry:

    I seem to get a surge of being able to do things around 4pm.
    I don't know if it's a circadian thing or if it's just a slight panic that Michael will be home in a couple of hours and nothing has been done to tidy up, giving me a tiny adrenalin boost.:alien:
  8. Mij

    Mij Senior Member

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    Interesting. I'm also looking at this and it describes a lot of symptoms I feel during the morning and early afternoon hours. The light headedness, muscle weakness, dizziness, jumpiness/jittery, flu like symptoms all over body aches, higher heart rate- this describes me. Wow, I never attributed it low cortisol. I don't have this in the evenings..
    http://www.stopthethyroidmadness.com/adrenal-info/symptoms-low-cortisol/
  9. Mij

    Mij Senior Member

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    Are there any ways to increase cortisol levels in the morning with natural supplements?
  10. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Cornwall, UK
    There may be a thread on this, but all I can think of is melatonin according to this study, although it was only in 'aged women' - not a term I appreciate as I fall into the age group that they define in this way! :(
    Mij likes this.
  11. anne_likes_red

    anne_likes_red Senior Member

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    One thing I've found is bright light first thing increases cortisol.
    ...Ideally with appropriate measures taken in the evening too, to avoid blue light. Exposure to blue light can phase shift, or shorten the melatonin cycle.
    Mij likes this.
  12. xxRinxx

    xxRinxx

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    Paducah, Kentucky
    I've been taking things to lower my coritsol because its high no matter what time of day. My acupuncturist(who is also a medically licensed doctor and did my blood tests) said my cortisol was off the charts..it went off the measuring system graph!
  13. Raindrop

    Raindrop Senior Member

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    I fit the profile of the type of pt described with cortisol levels reversed. I am WAY high at 2AM and thus why
    I cannot get to sleep. BUT WHY????? I am very low in the morning. I cannot do "light therapy" bc I cannot
    tollerate (at ALL!) any bright light whatsoever. Anyone have any ideas for shifting the cortisol or sleep wake cycles?
    ALSO.....does anyone have any experience with CORTITROL by Pharmanex??? Supposed to "ballance cortisol levels". Someone gave this to me to try.
  14. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Blue-blocking sunglasses can be used to help shift the sleep-wake cycle. If you do a search, you will find more about it on another thread(s).
  15. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Have you tried taking melatonin in the evening?
  16. Raindrop

    Raindrop Senior Member

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    Yes, I do take at night but doesn't seem to do anything. I take 1 to 2 mg about 1/2 to 1 hr before I try to sleep. Seems that like most other things, the longer you take, the less it works. If I go up to 3 mg then I get too dizzy.
  17. Raindrop

    Raindrop Senior Member

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    I did a search but could not find. Looked up on google. Has anyone you know used them who has severe
    sleep disorders and sleep reversal? They look expensive so wanted to know the probability of them working.
  18. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    I do not know anyone personally who is using them and an not sure of the severity of the sleep problems of the members here who are using them. Maybe someone who has used them for a severe disorder will let you know.

    If you haven’t already, you might want to read these threads:
    Circadian Rhythm Problems
    Ways to get sleep
    MeSci likes this.
  19. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Hadn't seen these ones! :) I will try to add my experiences there some time. There are also other sleep threads which are worth checking out.
  20. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Try this thread.

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