Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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do i have cfs or mold toxicity.....advise

Discussion in 'Hypersensitivity and Intolerance' started by equestrian111, Apr 24, 2012.

  1. equestrian111

    equestrian111

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    Not sure which way to pursue my treatment. I have had Mold exposure, but have moved to Mold free environment. I do have high epsteins barr and herpes 6. Extreme fatigue, shakes, insomnia, extra. But I do not have sore throat, swollen glands or sore joints. Any advise would be welcome. I have been house bound for 6 months now.
     
  2. *GG*

    *GG* $10 gift code at iHerb GAS343 of $40

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    Concord, NH
    Have you heard of/or considered Low Dose Naltrexone (LDN)? Is any environment mold free? Not really sure myself.

    GG

    PS Are you alone to treat yourself, or do you have a helpful or good Dr?
     
  3. equestrian111

    equestrian111

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    I have a gp that doesn't understand cfs. Also talked rover dantini that put in on valtrex. Only Dr I know for Mold is Dr schoemaker in Maryland. Totally different protocal.
     
  4. maddietod

    maddietod Senior Member

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    I've had CFS for 25 years, and I've never had swollen glands, fevers, etc. There are lots of sub-types.

    What were your results on Dr. Schoemaker's vision test?

    Are you housebound because you don't drive? Meaning, are you well enough to see doctors if somebody takes you? Because I think this is a very hard call to make on your own, and your time might be best spent searching for an enlightened doctor.

    Good luck!

    Madie
     
  5. xks201

    xks201 Senior Member

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    is LDN good for mold?
     
    *GG* likes this.
  6. equestrian111

    equestrian111

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    I can drive. Just not sure how to proceed. Am on valtrex now and have a few good days then crash for a week.
     
  7. equestrian111

    equestrian111

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    I did take the vision test on shoemaker's site. The 1st time I passed, then a few months later, I failed. I am slowly doing some of his suggested labs and maybe I will make the trip to Maryland. I heard he is not the most sympathic Dr. I was hoping I could find a Dr that uses his protocol. They don't rec
    ommend drs. Where are you from?
     
  8. *GG*

    *GG* $10 gift code at iHerb GAS343 of $40

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    Not sure myself, but it has many uses! It's lost patent protection, so no big studies are likely to be done, but if you can get the drug, probably worth a trial, doesn't usually work overnight, and only has a few side effects.

    GG
     

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