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do i have cfs or mold toxicity.....advise

Discussion in 'Hypersensitivity and Intolerance' started by equestrian111, Apr 24, 2012.

  1. equestrian111

    equestrian111

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    Not sure which way to pursue my treatment. I have had Mold exposure, but have moved to Mold free environment. I do have high epsteins barr and herpes 6. Extreme fatigue, shakes, insomnia, extra. But I do not have sore throat, swollen glands or sore joints. Any advise would be welcome. I have been house bound for 6 months now.
     
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    Have you heard of/or considered Low Dose Naltrexone (LDN)? Is any environment mold free? Not really sure myself.

    GG

    PS Are you alone to treat yourself, or do you have a helpful or good Dr?
     
  3. equestrian111

    equestrian111

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    I have a gp that doesn't understand cfs. Also talked rover dantini that put in on valtrex. Only Dr I know for Mold is Dr schoemaker in Maryland. Totally different protocal.
     
  4. maddietod

    maddietod Senior Member

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    I've had CFS for 25 years, and I've never had swollen glands, fevers, etc. There are lots of sub-types.

    What were your results on Dr. Schoemaker's vision test?

    Are you housebound because you don't drive? Meaning, are you well enough to see doctors if somebody takes you? Because I think this is a very hard call to make on your own, and your time might be best spent searching for an enlightened doctor.

    Good luck!

    Madie
     
  5. xks201

    xks201 Senior Member

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    is LDN good for mold?
     
    *GG* likes this.
  6. equestrian111

    equestrian111

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    I can drive. Just not sure how to proceed. Am on valtrex now and have a few good days then crash for a week.
     
  7. equestrian111

    equestrian111

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    I did take the vision test on shoemaker's site. The 1st time I passed, then a few months later, I failed. I am slowly doing some of his suggested labs and maybe I will make the trip to Maryland. I heard he is not the most sympathic Dr. I was hoping I could find a Dr that uses his protocol. They don't rec
    ommend drs. Where are you from?
     
  8. *GG*

    *GG* Senior Member

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    Not sure myself, but it has many uses! It's lost patent protection, so no big studies are likely to be done, but if you can get the drug, probably worth a trial, doesn't usually work overnight, and only has a few side effects.

    GG
     

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