Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Do changes in illness perceptions, physical activity, and behavioural regulation influence ...

Discussion in 'Latest ME/CFS Research' started by A.B., Feb 25, 2017.

  1. A.B.

    A.B. Senior Member

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    Do changes in illness perceptions, physical activity, and behavioural regulation influence fatigue severity and health-related outcomes in CFS patients?

    http://www.jpsychores.com/article/S0022-3999(17)30143-5/abstract
     
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  2. Barry53

    Barry53 Senior Member

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    Cannot access the full article, but:-
    So that boots GET into touch then.
    Not "cause" but "contribute to". Secondary not primary. So what point is being made ... other than no point at all?
     
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  3. Barry53

    Barry53 Senior Member

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    No more, I imagine, than they might "influence fatigue severity and health-related outcomes" in any other physically ill patients.
     
  4. A.B.

    A.B. Senior Member

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    Seems to be the same old "we're going to cherry pick correlations and interpret them causatively without considering ordinary explanations such as belief to be ill being merely the consequence of actually being ill".

    PS: so I suspect this is bad misuse of statistics.
     
    Last edited: Feb 25, 2017
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  5. A.B.

    A.B. Senior Member

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    Also I suspect the "all or nothing" group includes presumably individuals that are not pacing. Since their model requires deconditioning, they need to find some way to explain why people who may be (trying to be) more active can still be quite ill.
     
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  6. Barry53

    Barry53 Senior Member

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    And taking myself as an example (bearing in mind I am not the one with ME, and am in fairly good health), if for whatever reason it has been a really cr*p day, the weather has been dull/raining/miserable for days, the taxman has just cocked up my tax code yet again, etc, etc ... I will tend to feel a bit lethargic, not very energetic. Such things do influence a person, but that is way different to conflating that with being a cause! These folks do so love trying to make the innocently uninformed misinterpret influence as meaning cause. Or even if that is not what this paper is itself doing (only seen the outline), nonetheless providing grist for the BPS mill to do so generally.
     
  7. Valentijn

    Valentijn Senior Member

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    This probably ties into the Wiborg review (2010), where they revealed that reported improvements in fatigue were not matched by increased activity measured by actometer. Their absurd spin on that was that activity levels aren't relevant because they don't match up with fatigue results, since fatigue must be the most relevant measurement.

    It's blatant quackery, in other words, and borderline academic fraud.
     
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  8. antherder

    antherder a.k.a. Princess Dauer, Nematode Nation

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  9. Barry53

    Barry53 Senior Member

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    Prostitution of principles?
     
  10. antherder

    antherder a.k.a. Princess Dauer, Nematode Nation

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    Yeah, that sounds about right. They have sold their souls to the God of Psychobabble, haven't they.
     
    Last edited: Feb 27, 2017
  11. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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  12. TiredSam

    TiredSam The wise nematode hibernates

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    An improvement, but still way off the mark. "Make ME patients exercise and they get a lot worse" would be more accurate.
     
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  13. A.B.

    A.B. Senior Member

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    Actually it should be: our treatment is a placebo and our outcomes reflect that.
     
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