1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Patient Experience: "What Bronllys taught me about pacing."
In 2012, Maya, who had tried to cope with ME/CFS on her own for many years, attended a pain management centre in Wales, U.K., and is now able to achieve more through pacing and acceptance, than she had been able to before the course...
Discuss the article on the Forums.

dizziness and other neurological symptoms

Discussion in 'Neurological/Neuro-sensory' started by jen jen, Oct 16, 2010.

  1. jen jen

    jen jen

    Messages:
    20
    Likes:
    0
    Hi,
    I have suffered with M.E/C.F.S for 22 years. I wondered if other people have the same symptoms as me and if they have found anything that helps them.
    I have permament dizziness/vertigo and my head is numb (mostly at the top). Also I have buzzing in my legs (pretty much all the time). My head feels like it's gonna explode sometimes as I get this aweful pressure in it. I also have problems sleeping I take zolpidem 10mg and 30mg amitryptyline. Apart from this I have problems walking as my legs cramp a lot and my knees burn, I also suffer from fatigue after any exertion. I have a permament red throat and feel like something is stuck in my throat.

    I had the mitochondrial function test from Dr Myhill and my results were bad, I only scored 20% and have a 38% translocator blockage. I am on a regime of supplements following the test.

    Is there anyone else out there like ME ?????
  2. Carrigon

    Carrigon Senior Member

    Messages:
    805
    Likes:
    71
    PA, USA
    I've had it about twenty years now. Dizziness/vertigo, very frequently. Cramps, yes. Post Exertional totally. I had to go out yesterday for an appointment, couldn't find a close parking spot. Had to walk half a block to get there and half a block to get back to the car. I have now been literally dead since I went. I was in bed all day today and it's now seven at night. I'm still dead. And I haven't had an actual good night's sleep in probably twenty years.

    I take alot of magnesium for the cramps, that's the only thing that helps me.
  3. curry

    curry Senior Member

    Messages:
    107
    Likes:
    0
    Hi,

    +1 for magnesium.
    What also helped me is coQ10 - I take 2 x 200mg a day. Acetyl-L-Carnitine, around 3mg a day has been also very helpful so far.
    Hope you feel better soon.
  4. Esther12

    Esther12 Senior Member

    Messages:
    4,878
    Likes:
    4,182
    I've only been using it about a month, but have found sitting on a 'balance ball' to be helpful. I went through a period of getting migraines and vertigo, and after listening to a medical program on general balance problems decided to gve the balance ball a go and my problems have improved.

    It could just be a coincedence. Also, it does use a lot more energy than normal sitting down - but less than standing up!
  5. jen jen

    jen jen

    Messages:
    20
    Likes:
    0
    I have tried balance exercises in th past but they never did anything.
    I do take manesium (through the skin) as well at Q10 and acetyl-l-carnitine. I also take D-ribose, ascorbic acid, EFA's, ,multivitamins and minerals, niacinamide, Vit D and kefir. (been on these for 3 1/2 months now)

    I wondered if anyone has found any supplements that help the dizziness? Does anyone else have the numb head and buzzing in their legs
  6. shannah

    shannah Senior Member

    Messages:
    811
    Likes:
    131
    I get all of those symptoms including the numb head although not at the top - all across the back to the nape of the neck. Also get the buzzing in the legs & other places.

    Treating with antimicrobials has helped some (several of the different ones used for lyme). Lauricidin seems to be detoxing the body in a way that nothing else has been able to and the dizziness is not quite so bad at times.

    Just as a side note, magnesium always presents yeast issues for me.

See more popular forum discussions.

Share This Page