New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Director of The Graham Norton Show talks about his ‘other job’ – as a carer

Discussion in 'General ME/CFS News' started by Firestormm, Jun 13, 2014.

  1. Firestormm

    Firestormm Guest

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    Cornwall England
    Thanks to Tate for posting first via Co-Cure :)
     
    Last edited: Jun 13, 2014
    Bob, Sasha, AndyPandy and 8 others like this.
  2. Sasha

    Sasha Fine, thank you

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    You're doing great finding these stories, @Firestormm!

    I just rather stupidly pasted in the comment I made on the Telegraph story, forgetting that I'd pitched it about children, but oh well... better than nothing...

    My point being that we should be using every single one of these media stories to allow PWME to the fact that biomedical research is going on and that they should help fund it. My message was:

    Thank you for this excellent coverage of this devasting disease. The UK government, like most national governments, has spent almost nothing on biomedical research into it, leaving thousands of children severely disabled.

    Some will never recover, will be unable to complete their schooling, will never be able to go to college or have a job or career, or have a chance to marry and have a family.

    Many of us have been bedbound or housebound for decades. Please help to make sure that we don't lose another generation to this terrible illness and help fund biomedical research.

    Please donate to research. Patients are now successfully crowdfunding individual projects by world-leaders in their fields. Please help!

    http://www.ukrituximabtrial.org/

    www.microbediscovery.org

    http://cfsresearchcenter.org/


    I donate every month, whatever I can afford. Please join me and other patients around the world.​

    Feel free to adapt that message or create your own and do similar - these media pieces are golden opportunities.
     

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