Discussion in 'General ME/CFS News' started by Firestormm, Jun 13, 2014.
Thanks to Tate for posting first via Co-Cure
You're doing great finding these stories, @Firestormm!
I just rather stupidly pasted in the comment I made on the Telegraph story, forgetting that I'd pitched it about children, but oh well... better than nothing...
My point being that we should be using every single one of these media stories to allow PWME to the fact that biomedical research is going on and that they should help fund it. My message was:
Thank you for this excellent coverage of this devasting disease. The UK government, like most national governments, has spent almost nothing on biomedical research into it, leaving thousands of children severely disabled.
Some will never recover, will be unable to complete their schooling, will never be able to go to college or have a job or career, or have a chance to marry and have a family.
Many of us have been bedbound or housebound for decades. Please help to make sure that we don't lose another generation to this terrible illness and help fund biomedical research.
Please donate to research. Patients are now successfully crowdfunding individual projects by world-leaders in their fields. Please help!
I donate every month, whatever I can afford. Please join me and other patients around the world.
Feel free to adapt that message or create your own and do similar - these media pieces are golden opportunities.
You can also try a Google Site Search
Separate names with a comma.