The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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Differences in physical functioning between relatively active and passive patients with CFS

Discussion in 'Latest ME/CFS Research' started by Dolphin, Sep 3, 2013.

  1. Dolphin

    Dolphin Senior Member

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  2. Dolphin

    Dolphin Senior Member

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    Shows such sub-divisions have problems in chronic low back pain (CLBP). Also, highlights the problems of relying on self-report measures:
     
  3. Dolphin

    Dolphin Senior Member

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    They said:

    The therapists didn't have access to the activity monitor data when making the subdivision, but they did have a lot of other data, probably a lot more than clinical practice (these were baseline measurements for a clinical trial).


    In terms of the SF-36 physical functioning scale:
    Median (IQR)
    Relatively active: 60 [45.0-72.5]
    Passive: 45 [36.3-55.0]

    To me, this would mean classifying people who still had a reasonable amount of functioning as passive. Passive meant you weren't encouraged to stabilise at the start of CBT, just increase, which seems problematic. [Although, I question having this approach to any patients].
     
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  4. Dolphin

    Dolphin Senior Member

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    This is a random comment they make:
    I think there could be something to it. In which case, one approach would be to try to ensure patients do get help in their environment.

    Unfortunately, a lot of those promoting CBT blame the support people get for keeping people ill.
     
  5. Dolphin

    Dolphin Senior Member

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    and (from conclusion)
    Another reason to focus on using objective measures in trials, and doubt subjective measures, one would think.
     
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  6. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA
    Thanks for sharing research reports like this and breaking them down into such digestible chunks.
     
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  7. Sean

    Sean Senior Member

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    Translation: We still don't know shit.
     
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  8. biophile

    biophile Places I'd rather be.

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