Phoenix Rising: The Gift That Keeps on Giving All Year Long
This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all ...
Discuss the article on the Forums.

Did you have any problem with aerobic exercise before becoming ill? Like childhood?

Discussion in 'General ME/CFS Discussion' started by Sushi, Mar 19, 2017 at 4:16 PM.

  1. lakesarecool

    lakesarecool Senior Member

    Messages:
    104
    Likes:
    114
    100% exactly like this Pre-CFS. No matter how hard I tried to boost my cardio through regular aerobic training I could never up my capacity. Almost everyone around me would blow me out of the water when it came to cardio with minimal effort while I couldn't run for more than a few minutes even after training.
     
    merylg, Cinders66, NL93 and 3 others like this.
  2. arewenearlythereyet

    arewenearlythereyet Senior Member

    Messages:
    376
    Likes:
    849
    Uk
    Wasn't sporty at all....in fact was in the bottom PE group at school and was always the last picked for teams (even past the fat kid we called Jaffa ...don't know why and the runty kid with big teeth "chipmunk"). I never understood people when they said they got a natural high from exercise...I always assumed that they were just insane.....how can having heartburn/feeling sick when you run be pleasurable? I always had good stamina for walking or light jogging and good strength stamina for lifting and carrying....sprinting however was horrid. Never had PEM or anything of that sort.

    When I was older I bought a Nordic track machine and used to push myself on that in search of the elusive "burn". Never felt it, even at heart rates of 145 etc ..I guess I don't have endorphins with exercise, and nausea probably was my folate inhibition from my carbamazepine prescription. I do think some folks have a predisposition to this disease...perhaps the signs were always there or perhaps it just lay there dormant for the right set of circumstances.....who knows?

    EDIT: I have gradual onset CFS
     
    Last edited: Mar 20, 2017 at 3:09 AM
    merylg, Countrygirl, Aroa and 3 others like this.
  3. Old Bones

    Old Bones Senior Member

    Messages:
    632
    Likes:
    3,196
    CANADA
    I had trouble hiking at an altitude exceeding 9,000 feet above sea level (couldn't get enough oxygen). Otherwise, I was very sporty -- able to do sustained high-intensity activities (hiking, mountaineering skiing, cycling, and swimming).
     
  4. ryan31337

    ryan31337 Senior Member

    Messages:
    271
    Likes:
    491
    South East, England
    <10 years old I would play football from sunrise to sunset, win medals sprinting at school sports days etc. Completely normal.

    Then from aged 10 I had gradual onset: primarily fatigue, migraine and leg pain after prolonged exertion. Then infections (probably EBV), OI & increasing severity of migraines hit 12-18 months later and made the decline much more rapid.
     
    merylg, Valentijn, Aroa and 5 others like this.
  5. helen1

    helen1 Senior Member

    Messages:
    946
    Likes:
    1,254
    Canada
    I did a lot of competitive endurance sports especially running, plus team sports. I had better endurance than most people I knew.
     
  6. Marky90

    Marky90 Science breeds knowledge, opinion breeds ignorance

    Messages:
    952
    Likes:
    3,504
    Nope, but problems with getting gains from aerobic exercise preceded my ME with 1-2 years.
     
  7. Invisible Woman

    Invisible Woman Senior Member

    Messages:
    563
    Likes:
    2,772
    I had quite severe asthma 'till my teens. Then I grew out of it. I started playing sport and doing a lot of physical activity. I had a huge amount of energy. Then I got sick. :sleep:
     
  8. Snowdrop

    Snowdrop Vexacious, thy name is PACE

    Messages:
    2,055
    Likes:
    5,701
    Toronto
    I had gradual onset ME and as a child I could not keep up with others physically except that I was good at sports at school when short bursts of energy required (short distance running/race).

    Although my daughter does not have ME I have an even better idea of comparison having watched her and her school mates growing up. My daughter does not do well at sustained aerobic activity at all.
     
  9. NelliePledge

    NelliePledge

    Messages:
    46
    Likes:
    136
    i was pretty active as a kid took ballet and tap classes used to walk to school, played football (the proper sort!!) with my dad and brother in the back garden, went down to the shops on my bike for mum. But I was never that good at games or athletics and cross country running was my idea of hell as I just couldn't run for any distance and had to walk most of the way. Always struggled going uphill on country walks but could still walk several miles. I started being less active in my mid 30s when I was spending all my time on career and got my first car. I then gradually got less fit until by mid 40s I had put on quite a lot of weight but could still walk reasonable distances. But from then I think I had mild ME a lot of viral infections laryngitis, flu etc and in early 50s had a fall which pushed me into moderate symptoms and got diagnosed with CFS. Now depending on how my symptoms are I can manage to walk 2500 steps in a day at a push and more like 1000 most days. And I cant stand still so queues are very difficult.
     
  10. TigerLilea

    TigerLilea Senior Member

    Messages:
    722
    Likes:
    1,324
    Vancouver, British Columbia
    I was never athletic, however, I was always very active. My dad used to joke that I made him dizzy by how much I could do. The day that CFS/ME hit me was the day that my energy died. :cry:
     
    merylg, jpcv, Aroa and 3 others like this.
  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    12,683
    Likes:
    17,534
    Albuquerque
    This was my problems too. I remember when I was in a bike club and each spring we had training rides. The others quickly regained the stamina lost over the winter but I just couldn't make headway on increasing my aerobic tolerance. Then I would feel "sick" for a couple of days after a ride--but had no idea why--no one had every heard of PEM in those days.

    That said, as a kid I could do slower sustained exercise but ask me to sprint (kids were always having races) and I'd poop out half way to the finish line.

    Interesting replies everyone.
     
    merylg, PDXhausted, Valentijn and 6 others like this.
  12. rosie26

    rosie26 Senior Member

    Messages:
    2,191
    Likes:
    4,170
    The only odd thing I noticed as a child was a strange wheeze when I stood still and swung my arms around horizontally while exercising. This was the only exercise that caused that sound that I can ever remember. Does anyone else experience that wheeze with that particular exercise ?
     
    merylg and Sushi like this.
  13. *GG*

    *GG* Senior Member

    Messages:
    5,822
    Likes:
    4,154
    Concord, NH
    I did a lot of cycling as a child and all my adult life. Still bicycle a good bit. Could do a ton before getting ill, 3 strenuous sports in a day! Now if I exercise 1 day, I take the next off for rest :)

    GG
     
  14. Chezboo

    Chezboo

    Messages:
    23
    Likes:
    63
    I didn't have access to the variety of 'organised' sports many have being that I grew up in Ireland. It was hockey, hockey or hockey (the dark, cold windy field type). I hated hockey but loved other physical activities. I noticed that I was very good at anything I tired like climbing trees, long/high jump, horse riding, wind surfing even basket ball. I would say I was able for explosive type activities rather than aerobic. When I tired as a 10 year old to train for running a mile with a friend I found I had to give up as it was hell. It was clear I had absolutely no stamina and no amount of training would change that. In terms of onset, I am the gradual decline sort with an occasional burst of accelerated degeneration.
     
    anne_likes_red and Sushi like this.
  15. Murph

    Murph Senior Member

    Messages:
    118
    Likes:
    706
    I also miss running. I had been a somewhat fat and bookish child but I got into running aged about 16 and pursued it until I got sick and even somewhat afterwards.

    I wasn't good per se but god I improved dramatically - from 7 minute kms for 4km, down to doing sub 5 minute kms over a 10km course. I really enjoyed how running made me feel.

    Just before onset I was doing 10km a few times a week and playing sport, (but also going to a lot of parties getting rather drunk, and not eating very healthily, like a 20 year old man doesn't.)

    Seems like a lot of people were in the best shape of their lives *and* quite busy just before they got sick. I sort of hope there is something in common with overtraining syndrome because we could really use some of that elite sports research money!
     
  16. hellytheelephant

    hellytheelephant Senior Member

    Messages:
    590
    Likes:
    2,532
    S W England
    I always had problems with anything aerobic. I also had days where I just lay on my bed and read all day-I do wonder if I always had it.
     
    Shoshana, Sushi, Aroa and 1 other person like this.
  17. Forbin

    Forbin Senior Member

    Messages:
    723
    Likes:
    2,581
    I was thinking of starting a thread on this same subject.

    When I was in grade school, I had plenty of energy. I swam, played baseball, street football, and rode my bike for long distances. My friends and I were always running around the neighborhood. I had no reason to think that I had any difficulty with exercise or stamina.

    But... I discovered, to my surprise, that in fact I had no endurance for flat out exercise. My friends were engaging in no more "aerobic training" than I was, but in flat out running, or swimming, I would find myself gasping for air halfway through a race. I was not overweight. On the contrary, I was so thin that my mother questioned my pediatrician about it.

    In my early 20's, I thought I had discovered the answer to this when one of my early ME (mis)diagnoses was "mitral valve prolapse syndrome." It turned out, though, that my MVP was so slight that it could just barely be elicited by taking amyl nitrate (to induce rapaid heart rate). I subsequently saw a cardiologist who could not detect any MVP at all. He assured me that whatever the source of my (ME) symptoms was, it wasn't from MVP.

    I suppose MVP might have explained my lack of "flat out" endurance in childhood, but I now kind of doubt it. I've had plenty of cardio "stress tests" since then and none has shown anything that would explain this (unless the MVP somehow corrected itself after childhood).
     
    Sushi, Aroa and Chezboo like this.
  18. A.B.

    A.B. Senior Member

    Messages:
    2,877
    Likes:
    15,758
    I didn't have any problems and did sports, but remember being unhappy with running out of breath faster than other kids when playing soccer. That might just have been not being as trained for that kind of exercise.
     
    Last edited: Mar 20, 2017 at 3:52 AM
    Sushi likes this.
  19. johmil

    johmil Senior Member

    Messages:
    147
    Likes:
    145
    I wasnt that aerobic but nothing to base a theory on I would think in my case. On the other hand I got an infection that some of my friends got and they all couldnt excersise or hardly work during a half year. My got worse because I got a second infection aswell (flu I think). First one probably was C. pneumoniae
     
    Last edited: Mar 20, 2017 at 6:00 AM
    merylg and Sushi like this.
  20. KME

    KME

    Messages:
    58
    Likes:
    332
    Ireland
    Interesting thread. My answer is yes and no. Pre-onset, I was sporty, more than most of my family and friends, doing lots of running, hiking, walking and aerobics. As a child I was very active with multiple sports going on at all times and a lot of outdoor time. But at times I also seemed to have limits that other sporty types didn’t have. As a teen I was a sprinter, but I literally couldn’t do the warm-up laps. Anything bursty – fine. Anything endurance-y – crumpled heap. I got injured a lot more than my peers and eventually had to just bow out of competitive sports.

    In my twenties I learned what worked for me and what didn’t – I could jog regularly but needed to alternate a jog-day with a walk-or-hike-day to be able to sustain this, otherwise I would get colds +/- injuries; I couldn’t train for anything on other people’s terms, I needed to listen to my body rather than adhere to any kind of plan, e.g. others were able to train through a cold, whereas I learned from experience that I needed to stop anything beyond a light walk for at least 2 weeks with any infection, often longer. I exercised far more than most of my peers throughout my twenties, but these were the days before everyone was doing ironman/triathlon-type things. I did notice that I often became symptomatic with an infection the day after a run, so I seemed to be very susceptible to that little dip in immunity. A run seemed to be able to kind of put an infection through me, including the one that triggered my ME. Bit o' laziness would have helped me that night [she reflected from her hospital bed a few days later].


    I think there’s likely to be a normal range of exercise tolerance, perhaps with a bell-curve distribution, and I was well within it, towards the upper end but not able for professional levels. Exercise was a big part of my life and I miss it a lot. I sometimes put myself to sleep by imagining going for a run, from putting on my runners…although it has crossed my mind that if the mind-body people are right, I’ll get PEM just from visualising it, ha ha. Hasn't happened yet. I still remember the thrill of winning sprints, God, that was great.

    Edit Further to previous...I definitely had mild orthostatic intolerance from childhood, although I only realised what it was when it became a prominent part of my ME in my 30s. I think this is why tennis and most other ball sports made me feel awful - just vaguely nauseated and ugh-feeling, occasionally a bit lightheaded but generally just felt bad, even grumpy. All that standing still waiting for the other person to serve/take a penalty/whatever, and then bending down to pick up the ball. Not good. Makes so much sense now. Swimming was the same for me, I think because of indoor pools being heated (the air was the problem, not the water) and no fresh air. So running was a good find, as it builds up the muscles in your legs, which helps OI, and the colour of my face suggested plenty of blood was making it to my head. I wonder did any others have OI-type exercise issues as children?
     
    Last edited: Mar 20, 2017 at 8:39 AM

See more popular forum discussions.

Share This Page