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Did anyone use CellTrend to make a treatmet decision on Rituxan & did insurance pay?

Discussion in 'Rituximab: News and Research' started by Hopeful_In_San_Francisco, Dec 13, 2016.

  1. jaybee00

    jaybee00

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    Hi,

    Any other updates or thoughts about using CellTrend results to guide treatment? Is Dr. J Edwards still negative or unconvinced about the utility of the CellTrend test? The only thing I saw from the 2016 paper was that people with very high antibody levels did not respond to rituximab.


    Thanks
     
    perrier likes this.
  2. kms1990

    kms1990

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    I had positive cell trend results along with other immune abnormalities. I am on IVIG for 2 months now. It is helping me but I am still very ill. I have been sick with this over 8 years so I think my recovery will be slow and possibly not complete. However, I am hopeful I will get back to my previous level of health eventually.
     
    Sushi, pattismith and Gingergrrl like this.
  3. Gingergrrl

    Gingergrrl Senior Member

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    USA
    Are you doing high dose IVIG for autoimmunity? I started with a low dose dose, moved to a moderate dose, and then finally to high dose. Does your doctor still feel it could be effective for you?
     
  4. kms1990

    kms1990

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    Hi, yes I am doing it for autoimmunity. I get it weekly though @ .4g per kg. I tried doing loading doses monthly but it was too hard on me. Weekly was suggested by a neurologist I saw at Mayo clinic. Its much more tolerable for me and its working. Though its slow progress. Yes almost all doctors I have seen within the last year think its my best shot at improving.
     
    Gingergrrl likes this.

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