The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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Diagnostic Criteria - can we resolve our community's differences?

Discussion in 'Action Alerts and Advocacy' started by Bob, Feb 2, 2011.

  1. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    WA, USA
    I just don't want to promote the idea that there is such a thing as a useable "syndrome of CFS" that we can logically put people into which don't fit x criterion for ME.

    I reject the ME versus CFS dichotomy because I reject the notion that there is a valid clinical entity of CFS. There is no clinical entity which can validly be described by Fukuda, Holmes, Oxford, or Lloyd/Hickie 'definitions' or identified by the "Empirical approach". Simply doesn't exist in real life. In a CFS group there are 1) misdiagnosed people with a variety of other primary conditions which have been missed for whatever reason.

    Then there is 2) ME, and there may be a whole spectrum of ME-like diseases (whether like or unlike eitiologically; I do not see that we have the evidence to know which, at present), perhaps in a similar way that there are various forms of MS and diabetes and lupus, in a similar way as we think the autoimmune disease categories we have presently are arbitrary and artificial and there is a lot of variety within what we currently label with the same disease name.

    I do not think that ME is different from the RA example I linked to and I think it is unrealistic to think that ME should be expected to yield a more pure patient sample than SLE, RA, MS, etc.

    I think our inappropriate struggles for legitimacy have foisted unrealistic expectations upon us, since we are held to a different standard (many other diseases do not have biomarkers which are present among all/substantially all persons diagnosed, many other diseases do not have an ultimate causation identified [comparatively few do]; yet these things are demanded from our disease).
    alex3619 likes this.

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