I have been through the ringer. my health has been spiraling downward for the past 3 years. There was a period of a few months when things started to even out and even improve slightly. I actually went to Target. Now since this summer, I'm on a steady decline. Been through all the tests, tons of specialists at BIDMC in boston. Finally, I am diagnosed with CFS by exclusion. Ok,now what? How do I know this is real? I fit every symptom. But I have on a lot of everything else, that turned out to be negative. All my doctor said was try to get in with Felsenstein at MGH or go to Mayo Clinic. other than that, get a massage or acupuncture?? I'm still waiting on Felsenstein to review my records. From what I have read here, it can take a while for an appointment. I fear I don't have a while. My "good" days are being devoured by my bad ones. Today I can speak a little stronger than yesterday, but I can't move off the couch without assistance. I need someone to help me understand what and why this has happened to me. I need someone to help me stop this from getting any worse, before I loose anymore of myself. I am so scared that there is a point of no return and that I am knocking on its door. should I seek another ID dr while waiting for Felsenstein? I have looked at the dr. databases, and researched the doctors there. They seem to get trashed in the patient reviews online. I am tired of seeing drs that make me feel like I am wasting their time. I have lost faith in the medical profession b/c they make me feel worthless. That I should just stay home and suffer in silence. Can someone direct me?