Hi Guys,
I havnt posted here for a while, though I talk to snowathlete regularly who keeps me in the loop somewhat
So my story. I developed CFS 4 years ago. Gradual decline for 6 months (energy in gym.went down, digestion terrible) until hit by proper flu at xmas. Never recovered.
Since then I feel.I have tried a huge amount. Diet, supplements, Infra red saunas, HBOT, Armour Thyroid, meditation etc etc. The usual mitochondria stuff too.
Things that have worked, very briefly have been few but include:
Infra red sauna-cogntive clarity, grip strength and relaxation for 2 days. Now hard to tolerate. No effect except for exhaustion, including using electrolytes etc.
Armour Thyroid- Took as my TSH is always slightly high (3.5+) but my ft3 ft4 and rt3 are all normal, and upper range. Took one half grain and within 2 hours i had 30% ish more energy. Could actually feel the energy 'running through my veins' per se. Remarkable but lasted only a day or two, maybe a week with less effect.
HBOT- First time using felt.most relaxed in 4 years but effect wore.off and didnr continue. Too ill to carry on though i did have 15 sessions.
LDN helped. New tablets dont so much but if I go off them.I seem to.sometimes get a fever. Wondering if Th2-th1 is happening but believed LDN was a TH1 dominant modulator so bit confusing.
Thats about it thats worked!
My main symptoms are:
Extreme fatigue (my mitochondrial function is down the drain)
Brain fog
Very poor.digestion, pale stool. Dont seem to produce any bile or stomach acid anymore!
Unrefreshing sleep
Sinus issues, cleared up with gaps diet recently
I had some tests done at ArminLabs for Lyme and coinfections. Will atttach here.
Was positive on the Elispot but not hugely convinced. However positive on EBV, Coxsackie, and CMV CP (debatable).
So I seem to have a huge viral load, and am currently taking Valtrex 4g daily aka Dr Lerner. Yes Valcyte would.probably be better but is horrendously expensive and heavy side effects so this is first.
NOTHING seems to heal my gut, I can make myself constipated with glutamine, but if I dont use that my stool is always yellowish (sorry guys), mushy and mucous like. Again, honesty matters
Digestive supps do absolutely nothing, though Lemon Juice seems to help with the colour back to normal. Helping Bile production?
Also as my CFS started with digestive upset, Im wondering if it was Coxsackie and things spiralled from.there. Currently on Equilibrant for Coxsackie too.
Doing Nutramedix Herbs for lyme and Viruses.
Sorry for long post. Any ideas Id be most grateful.
B
I havnt posted here for a while, though I talk to snowathlete regularly who keeps me in the loop somewhat
So my story. I developed CFS 4 years ago. Gradual decline for 6 months (energy in gym.went down, digestion terrible) until hit by proper flu at xmas. Never recovered.
Since then I feel.I have tried a huge amount. Diet, supplements, Infra red saunas, HBOT, Armour Thyroid, meditation etc etc. The usual mitochondria stuff too.
Things that have worked, very briefly have been few but include:
Infra red sauna-cogntive clarity, grip strength and relaxation for 2 days. Now hard to tolerate. No effect except for exhaustion, including using electrolytes etc.
Armour Thyroid- Took as my TSH is always slightly high (3.5+) but my ft3 ft4 and rt3 are all normal, and upper range. Took one half grain and within 2 hours i had 30% ish more energy. Could actually feel the energy 'running through my veins' per se. Remarkable but lasted only a day or two, maybe a week with less effect.
HBOT- First time using felt.most relaxed in 4 years but effect wore.off and didnr continue. Too ill to carry on though i did have 15 sessions.
LDN helped. New tablets dont so much but if I go off them.I seem to.sometimes get a fever. Wondering if Th2-th1 is happening but believed LDN was a TH1 dominant modulator so bit confusing.
Thats about it thats worked!
My main symptoms are:
Extreme fatigue (my mitochondrial function is down the drain)
Brain fog
Very poor.digestion, pale stool. Dont seem to produce any bile or stomach acid anymore!
Unrefreshing sleep
Sinus issues, cleared up with gaps diet recently
I had some tests done at ArminLabs for Lyme and coinfections. Will atttach here.
Was positive on the Elispot but not hugely convinced. However positive on EBV, Coxsackie, and CMV CP (debatable).
So I seem to have a huge viral load, and am currently taking Valtrex 4g daily aka Dr Lerner. Yes Valcyte would.probably be better but is horrendously expensive and heavy side effects so this is first.
NOTHING seems to heal my gut, I can make myself constipated with glutamine, but if I dont use that my stool is always yellowish (sorry guys), mushy and mucous like. Again, honesty matters
Digestive supps do absolutely nothing, though Lemon Juice seems to help with the colour back to normal. Helping Bile production?
Also as my CFS started with digestive upset, Im wondering if it was Coxsackie and things spiralled from.there. Currently on Equilibrant for Coxsackie too.
Doing Nutramedix Herbs for lyme and Viruses.
Sorry for long post. Any ideas Id be most grateful.
B
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