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Detection of Mycotoxins in Patients with CFS

Discussion in 'Latest ME/CFS Research' started by slayadragon, Apr 11, 2013.

  1. Christopher

    Christopher Senior Member

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    When you moved, did you throw out everything, or keep possessions?
  2. detts

    detts

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    Yes that makes sense about the mast cells and I do believe I have a problem with hyperactivity. I am on Azelastine spray now . I am not sure if the Amph B affects me too, I will try that on its own without the edta and see if I get a reaction from that too.
  3. Soundthealarm21

    Soundthealarm21 Senior Member

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    A lot of our stuff is being cleaned. It's an insanely thorough process that we're going through with the house. I know that a lot has been thrown out, but things like furniture are being kept. All papers, cloth, and the like are being thrown out. Carpeting being completely redone, etc.
  4. detts

    detts

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    I am moving and throwing out all soft furnishings - beds, sofa , wall hangings etc etc , many clothes. I am having cleaned all non porous items so hope to be able to keep the computers etc. All paper work is going into containers as I can't throw it away - business documents etc- will photocopy at another time. Hope this all works!
  5. Soundthealarm21

    Soundthealarm21 Senior Member

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    @detts

    Just so you know, bleach does not kill mold, but hydrogen peroxide does (in terms of wiping off items like plastic, glass, etc). Something I learned a few months ago.
    Little Bluestem and detts like this.
  6. detts

    detts

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  7. Soundthealarm21

    Soundthealarm21 Senior Member

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  8. detts

    detts

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    Yes I like the idea of hydrogen peroxide much more - seems like it would be easier on the lungs for one thing- although masks will be worn during the cleaning process.
  9. Christopher

    Christopher Senior Member

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    Detts I am finding that electronics are very bad with this sort of thing. I recommend starting without them if you can and then adding in later.
  10. detts

    detts

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    Thanks Christopher I will bear that in mind. Better safe than sorry I know!
  11. Skiii

    Skiii

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    I haven't done the amphoB since last Saturday, and I am still dealing the stuffiness/congestion. I haven't been able to breathe out of one side of my nose or the other the majority of the week. Feeling a little desperate for some relief, as sudafed and antihistamines aren't working, and I'm tired of not sleeping well.

    Soulfest- what does xylitol do? I'm not sure I could even do a rinse at this point. I will pick up some Nasalcrom a try. I have never tried Nasalcrom before, I'm shocked it's never been recommended to me before. Do you think it would interfere with the protocol? Any other suggestions?

    I've read that steroid nasal sprays aren't good but I haven't read and explanation as to why.
    I don't know anything about mast cells. I've had environmental allergies my whole life though.
    Last edited: Aug 11, 2014
  12. Skiii

    Skiii

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  13. detts

    detts

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    My understanding about steroid nasal sprays is that they will feed any fungal infections in your nose so not good because of this.
    soulfeast likes this.
  14. Skiii

    Skiii

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    Yeah I wonder. The pharmacist at ASL said it's fine to do a steroid spray, and then it was mentioned in that article.

    The Nasalcrom and getting some real sudafed from behind the pharmacy counter seemed to help quite a bit.

    Both the pharmacist and my doctor said it was actually a very positive sign that I reacted like that, we're on the right track. And I have had acute neck/shoulder pain this week for the first time since going on CSM, indicating there's definitely more mycotoxins floating around in me. My doctor is actually meeting with Dr. Nathan today and is going to discuss whether to just do a much smaller dosage of amphoB or switch to Nystatin. I'll keep you posted.
  15. detts

    detts

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    I'd be very interested in hearing about the nystatin if they put you on that. Were you able to tolerate the edta ? I can't use it at all now.
  16. soulfeast

    soulfeast Senior Member

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    xyitol is helpful against strep and busts biofilms.
    detts likes this.
  17. Soundthealarm21

    Soundthealarm21 Senior Member

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    The sugar alcohol?
  18. soulfeast

    soulfeast Senior Member

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    yes
  19. Forebearance

    Forebearance Senior Member

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    I can't believe it. I tested negative on the RTL urine mycotoxin test, twice!
    So now what do I do? I am left wondering if I'm not detoxing much at all, or if I don't have an internal source of toxins. ARGH!!!

    I would really like to get a NasaTouch machine and try putting natural stuff in it that I squirt up my nose already, like xylitol and colloidal silver, but the ASL pharmacy will only sell it with a prescription.
  20. cigana

    cigana Senior Member

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    What about using a diffuser?
    Forebearance likes this.

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