- Messages
- 92
AFME have put up a page with info on how to live stream the CMRC conference and a link to the full programme. There seems to be planned the announcement of 1 new MRC funded CFS/me project this year.
http://www.actionforme.org.uk/get-informed/news/our-news/action-for-me-to-livestream-cmrc-conference
My own feelings are there is lots of talk about the right things but no proper financial backing to set up fitting research strategy to make serious progress & it remains to be seen what the potential impact of the 1 new study will be.
As someone very severely ill i would have liked one segment to focus on the severe so we move away from fatigue and on to disability and impairment and also i would like to see a short showing of a powerful film about the severe, such as action for mes own 3 minute, just to give an appropriate understanding of the great need out in the community to the attendees, many of whom Will have never met the more severely ill.
http://www.actionforme.org.uk/get-informed/news/our-news/action-for-me-to-livestream-cmrc-conference
My own feelings are there is lots of talk about the right things but no proper financial backing to set up fitting research strategy to make serious progress & it remains to be seen what the potential impact of the 1 new study will be.
As someone very severely ill i would have liked one segment to focus on the severe so we move away from fatigue and on to disability and impairment and also i would like to see a short showing of a powerful film about the severe, such as action for mes own 3 minute, just to give an appropriate understanding of the great need out in the community to the attendees, many of whom Will have never met the more severely ill.