The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
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Desperate to exercise

Discussion in 'General ME/CFS Discussion' started by littlebird6180, Sep 13, 2016.

  1. littlebird6180

    littlebird6180 Senior Member

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    I can't even remember the last time I exercised - or rather, had an exercise routine. Maybe a decade now or longer. Anyway, I'm just watching my muscles atrophy, everything hurts. I really am desperate to start to try and strengthen my body. Is there any way to do this? I'd like to strengthen my legs, abs and back most of all.
     
    L'engle, hellytheelephant and Mel9 like this.
  2. lnester7

    lnester7 Seven

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    I excercise and have mostly all through my CFS, the same day I saw a CFS specialist I measured the Anaerobic Treshold, Mine was at 115bpm.
    There are some videos and good info, there is a exercise group in facebook (ME/CFS Safe exercise team) that explains how to do it safely, has good links/materials.

    whatever you do I would start horizontal and keep under your AT (avoid aerobic for now). That is the trick, use gravity as your friend for now, This will help you not to get too orthostatic. Once you have core and leg strength you can move more vertical (like stationary bikes...).
     
  3. littlebird6180

    littlebird6180 Senior Member

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    Thanks, that makes sense. I'll look into that group.

    Has anybody tried medically guided exercise? Does insurance cover it?
     
  4. lnester7

    lnester7 Seven

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    I have POTs too, and there is a Phisio that is for CFS, so I saw 2 exercises doctors one for CFS and one for OI. they contradicted each other. The POTs Dr told me to increase Aerobic slowly but do it laying down. CFS told me to exercise under AT (not aerobic) so I mixed what I could do of both (do the horizontal, but under AT) and that worked. So if you have OI or CFS the exercise type / way will be different based on your current issues.
     
    Chocolove likes this.
  5. taniaaust1

    taniaaust1 Senior Member

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    many ME/CFS patients use those stretchy resistance band things to exercise. That's probably the best way to strengthen things without putting one at too much risk. Just dont do too many repetitions
     
  6. -Jessie-

    -Jessie- Senior Member

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    Earlier this year I was pleased to discover that sometimes I am able to tolerate Planks. When I can do them I have noticed good results.

    They are one of the simpler things I have tried. I just have to get my body into position, hold it, and remember to breathe. I have only been able to do full planks and elbow planks so far. 20 seconds to a minute+, 1-2 times. 1 or 2 times a day. Sometimes just 1 time every other day. (Lately not at all)

    If I am showering, grocery shopping, too tired, or having increased pain and spasms, then I don't do planks on those days... it would be too much, but I also have Fibro and neck/back injuries that I have to be careful not to aggravate.
     
  7. Cheesus

    Cheesus Senior Member

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    I would give anything to be able to go for a run. Even better if it were a cold and rainy night. I love running in the rain. It's so refreshing and satisfying.

    A man can dream.
     
    AndyPandy and Dechi like this.

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