I really need your advice / ideas / or any useful comments. My girlfriend has becoming increasingly ill in the last 2 months and we've seen a few "specialists" in the best private hospital to no avail.
I am so fed up with conventional doctors and don't want her to go down the same path as i have in the last 3 years; paying huge amounts of money and wasting loads of time without any clear outcome.
Conventional docs are arrogant and incompetent to treat any chronic illness.
I'm desperate guys, really. She lost about 50% of her hair in 2 months, is tired all the time, having these weird blackish rashes on her skin of which some are painful and she keeps losing weight.
To me it looks like it's a viral or bacterial infection or a combination thereof but the docs we have seen have not even slightly shown any interest in my suspicions.
Another thing that might be possible is a nickel / titanium / latex allergy caused by her metal braces. If i look back to when some of her symptoms started it was approx. 1 to 2 months after she got the braces 1.5 years ago.
My suspicion for nickel or other metal allergy is confirmed by the fast that she can't wear low quality earrings, it gives her a rash.
I've made two more appointments for tomorrow. One with a dermatologist and one with a hematologist.
I hope the hematologist will have some better insight into her problems but i don't suspect much from the dermatologist. I'm going to force him to do at least some patch testing to check for nickel / titanium / latex allergy.
After this i'll send her to a private lab to have at least IgM / IgG tested on all common CFS viruses like CMV, EBV etc.
What else can i do to help her???
To list her symptoms:
Dark spots on lower back, itchy and red after showering
Dark spots above/behind both ears
Dark spots and dots on toes and feet, painful
Dark spot on side of tongue
Dark spots and dots on handpalm and fingers, painful
Extreme Hair loss, thinning areas
Left kidney pain sometimes
waking up at night 3 to 6 times to urinate, no restful sleep
Allergic reactions, unknown cause
* Swollen lips, rash, sneezing
Weight loss (unable to gain weight) 46kg to 40kg (she's short but now also underweight)
Diahrrea sometimes (not in the last 2 weeks)
Intestinal cramps sometimes (not in the last 2 weeks)
Tired and weak feeling daily, needs at least 12 hours sleep each day.
Headache sometimes
Abnormal Clinical findings:
Low White blood cell count 2.5 (ref. range = 4.5 to 10)
Low neutrophils 52.8 (ref. range = 55 to 75%)
High lymphocytes 38.8 (ref. range = 20 to 35%)
Low Hemoglobin 11.1 (ref. range = 12 to 16)
Low Hematocrit 33.7 (ref. range = 37 to 47)
Low MCV 79.6 (ref. range = 80 to 96)
Low MCH 26.1 (ref. range = 27 to 31)
Low Platelet count 153 (ref. range is 150 to 450)
Low BUN 6 (ref. range = 8 to 20)
Liver:
High globulin 3.7 (ref. range = 2.5 to 3.5)
low HDL-C 33 (ref. range = 50 to 150)
PAP smear: abnormal cell from cervix biopsy but no HPV
Other stuff:
X-ray chest normal
Ultrasound full abdomen normal
EKG normal
ANA / ANF negative
Stool test normal, no parasites or pathogens
Urine test normal
I am so fed up with conventional doctors and don't want her to go down the same path as i have in the last 3 years; paying huge amounts of money and wasting loads of time without any clear outcome.
Conventional docs are arrogant and incompetent to treat any chronic illness.
I'm desperate guys, really. She lost about 50% of her hair in 2 months, is tired all the time, having these weird blackish rashes on her skin of which some are painful and she keeps losing weight.
To me it looks like it's a viral or bacterial infection or a combination thereof but the docs we have seen have not even slightly shown any interest in my suspicions.
Another thing that might be possible is a nickel / titanium / latex allergy caused by her metal braces. If i look back to when some of her symptoms started it was approx. 1 to 2 months after she got the braces 1.5 years ago.
My suspicion for nickel or other metal allergy is confirmed by the fast that she can't wear low quality earrings, it gives her a rash.
I've made two more appointments for tomorrow. One with a dermatologist and one with a hematologist.
I hope the hematologist will have some better insight into her problems but i don't suspect much from the dermatologist. I'm going to force him to do at least some patch testing to check for nickel / titanium / latex allergy.
After this i'll send her to a private lab to have at least IgM / IgG tested on all common CFS viruses like CMV, EBV etc.
What else can i do to help her???
To list her symptoms:
Dark spots on lower back, itchy and red after showering
Dark spots above/behind both ears
Dark spots and dots on toes and feet, painful
Dark spot on side of tongue
Dark spots and dots on handpalm and fingers, painful
Extreme Hair loss, thinning areas
Left kidney pain sometimes
waking up at night 3 to 6 times to urinate, no restful sleep
Allergic reactions, unknown cause
* Swollen lips, rash, sneezing
Weight loss (unable to gain weight) 46kg to 40kg (she's short but now also underweight)
Diahrrea sometimes (not in the last 2 weeks)
Intestinal cramps sometimes (not in the last 2 weeks)
Tired and weak feeling daily, needs at least 12 hours sleep each day.
Headache sometimes
Abnormal Clinical findings:
Low White blood cell count 2.5 (ref. range = 4.5 to 10)
Low neutrophils 52.8 (ref. range = 55 to 75%)
High lymphocytes 38.8 (ref. range = 20 to 35%)
Low Hemoglobin 11.1 (ref. range = 12 to 16)
Low Hematocrit 33.7 (ref. range = 37 to 47)
Low MCV 79.6 (ref. range = 80 to 96)
Low MCH 26.1 (ref. range = 27 to 31)
Low Platelet count 153 (ref. range is 150 to 450)
Low BUN 6 (ref. range = 8 to 20)
Liver:
High globulin 3.7 (ref. range = 2.5 to 3.5)
low HDL-C 33 (ref. range = 50 to 150)
PAP smear: abnormal cell from cervix biopsy but no HPV
Other stuff:
X-ray chest normal
Ultrasound full abdomen normal
EKG normal
ANA / ANF negative
Stool test normal, no parasites or pathogens
Urine test normal
Last edited: