Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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DePaul/Jason: The impact of symptom stability on time frame and recall reliability in CFS

Discussion in 'Latest ME/CFS Research' started by mango, Aug 30, 2016.

  1. mango

    mango Senior Member

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    The impact of symptom stability on time frame and recall reliability in CFS.

    Evans M1, Jason LA1.
    1DePaul University.

    Cogent Psychol.
    2015;2(1). pii: 1079945. Epub 2015 Aug 28.
    DOI: 10.1080/23311908.2015.1079945

    Abstract

    OBJECTIVE:
    This study is an investigation of the potential impact of perceived symptom stability on the recall reliability of symptom severity and frequency as reported by individuals with chronic fatigue syndrome (CFS). Symptoms were recalled using three different recall timeframes (the past week, the past month, and the past six months) and at two assessment points (with one week in between each assessment).

    METHODS:
    Participants were 51 adults (45 women and 6 men), between the ages of 29 and 66 with a current diagnosis of CFS. Multilevel Model (MLM) Analyses were used to determine the optimal recall timeframe (in terms of test-retest reliability) for reporting symptoms perceived as variable and as stable over time.

    RESULTS:
    Headaches were recalled more reliably when they were reported as stable over time. Furthermore, the optimal timeframe in terms of test-retest reliability for stable symptoms was highly uniform, such that all Fukuda1 CFS symptoms were more reliably recalled at the six month timeframe. Furthermore, the optimal timeframe for CFS symptoms perceived as variable, differed across symptoms.

    DISCUSSION:
    Symptom stability and recall timeframe are important to consider in order to improve the accuracy and reliability of the current methods for diagnosing this illness.

    KEYWORDS: Assessment; Chronic Fatigue Syndrome; Recall Reliability; Symptom Stability

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4831646/pdf/nihms774522.pdf
    http://www.ncbi.nlm.nih.gov/pubmed/27088114
     
    barbc56, Bob, Valentijn and 1 other person like this.
  2. barbc56

    barbc56 Senior Member

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    It might be me, but I don't get this. If some of us have cognitive fog wouldn't that be a factor in recall and do they consider this if you read the complete study?

    DePaul usually comes out with some good studiee. Unfortunately, not all the time.

    But, I haven't a clue if this study might be helpful in a clinical setting!
     
  3. RogerBlack

    RogerBlack Senior Member

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    On skimming the paper, it seems a reasonable attempt to try to work out how well people can recall past symptoms.
    This is very obviously important if you're going and asking someone at their 12 month followup a list of questions about the last 6 months that many of them will have forgotten half of that period.

    Short-term variability in the condition is rapidly forgotten.
    Study design with people being asked about their history should at least try to take this into account.
     
    A.B. likes this.

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