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Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
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DeMeirleir's Seminar Videos

Discussion in 'General ME/CFS News' started by Daffodil, Mar 15, 2013.

  1. Daffodil

    Daffodil Senior Member

  2. Guido den Broeder

    Guido den Broeder *****

    Rotterdam, The Netherlands
    Knowing that they with two other groups (MS and OI) received almost € 600.000 for creating these videos, the results are not stellar. Just the one doctor's view - Belgian, too, rather than Dutch, not really suitable for the less informed viewer, and kind of a mess with knowledge and speculation much intertwined.

    It is an entirely different setup from the proposal for this project that I presented on behalf of the original ME/CVS Vereniging (since succeeded by the ME Vereniging Nederland) in 2010/11. The project was intended as one of our three corner stones to bring ME awareness on par with that of other chronic diseases in The Netherlands, the other stones being a ME guideline (in development) and a patient panel (now running for over a year already). Without synergy and consistency it is just one of many similar isolated efforts.

    Sadly, after we had done all the preparatory work, the Dutch Minister of Health granted the subsidy to mr. Wijbenga's group instead. What one foreign doctor is saying on Youtube will not threaten the CBT/GET-only policy in The Netherlands, after all.
  3. Shell

    Shell Senior Member

    I found the vids interesting, and I was pleased de Meirleir said that the psychological approach wasn't right. But if this was meant as a full scale awareness campaign- then no, it falls well short of that. I am sorry all your hard work was filched and trampled by politics Guido.
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Hi Shell,

    Those videos are part of a series--short talks on a number of relevant symptom-treatment aspects. The series also includes talks by other doctors. So far only a few of them have been English-subtitled, but there will be more.

    Valentijn likes this.

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