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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Defining recovery in chronic fatigue syndrome: a critical review

Discussion in 'Latest ME/CFS Research' started by Firestormm, May 6, 2014.

  1. Dolphin

    Dolphin Senior Member

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    Frank writes about his response here (in Dutch): http://www.hetalternatief.org/Herstel Twisk Objectiveren Symptomen 2014 1229.htm

    Here's a Google translation of it:

    Esther12, Cheshire, Valentijn and 2 others like this.
  2. A.B.

    A.B. Senior Member

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    Yes, of course the psychosocial proponents will be against objective testing - because their house of cards would implode the moment objective testing becomes the norm for evaluating severity of ME/CFS.

    Twisk seems to be handling the situation well.
    Valentijn and Bob like this.
  3. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    I think that it should be adopted in EBM practice to downgrade any study using subjective evidence, automatically, whereas studies with high effect sizes for objective evidence already can have their evidence ranking upgraded.
    Cheshire and Valentijn like this.
  4. Sean

    Sean Senior Member

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    So how do they know if patients have actually achieved "a sustained reduction of symptoms to normative levels and restoration of premorbid functioning" if they don't have a solid objective standard?

    Round and round the mulberry bush we go.

    Again.
    Last edited: Jun 16, 2014
    alex3619, Cheshire and Valentijn like this.

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