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Dealing with Wessely's media attacks: what you should know

Annikki

Senior Member
Messages
146
Note: there has a been a correction to this article. Michael Sharpe of the Wessely school worked for UNUM. Simon Wessely does not; he works or worked for another insurance multinational called PRISMA. I don't know if Wessely is still currently in their employ.

I think the basis for Wessely's media campaign has its roots in deeper soil than just Wessely's commitment to an ideology. Remember, this is about money more than genuine medical debate. Wessely and his peers at Kings College are awash in disability insurance money.

Michael Sharpe, member of the Wessely school, is/was involved with the multinational disability insurance company UNUM. (Sorry; the article I'm looking at is dated for 2002. I don't have current information) UNUM has much to gain by having us all reclassified as crackpots. So does PRISMA I imagine. The odd thing is that when looking at facts about the class action lawsuit which was made against UNUM or UNUM Provident as it used to be called, I see UNUM customers go through the same sort of attacks on the legitimacy of their symptoms. The goal of UNUM seems to be reducing the number of people it has to cover. Other authors have attributed Wessely school corporate ties to disability insurance corporations as motivating their psychiatric relabeling of ME/CFS.

The benefit to the disability insurance companies involved would be reducing the number of people eligible for disability insurance. The documented activities of UNUM in regard to its customers would support that hypothesis. UNUM was also investigated for encouraging its customers in the U.S. to apply for Social Security Disability. It is illegal in the U.S. for a private disability insurance company to encourage customers to apply for government benefits. Such activities indicate UNUM doesn't want to have to pay to fully cover its customers. A shift in the official labeling of neurological disorders to psychiatric may help with such a goal. Psychiatric disorders can be "treated" and the person sent back to work. Someone with a neurological condition would not likely be expected to return to work due to genuine physical limitation.



All these facts you already know. What you may not know is what I'm going to share here. Thankfully I'm very familiar with public relations tactics. At the end of this article I'll share some great links to which share more about these topics.

We complain about how many media outlets give Wessely a chance to spew lies and rightfully so. It seems this August he has been on overdrive. Why should the Wessely school be so active in advocating for their agenda over using CBT in place of medicine for CFS/ME this month?

In the business world, when corporate misconduct happens, the guilty business will use the media to paint (or twist) reality in a light which make it looks good. For example, after BP spills a lot of oil in the Gulf of Mexico, and then it makes a bunch of commercials showing BP workers helping families in New Orleans. It will do this while it is also appealing the US government to allow it to stop paying to assist those families. Using media is one way that opinions can be forged to benefit a company, even in the face of evidence to contrary. Look up the term "greenwashing" for a start.

One thing I always keep in mind when looking at Wessely is that he is a corporate officer at PRISMAand his colleague Michael Sharpe works for UNUM. In dismantling his arguments I'm going to not just look at medical research, but assume there are profit motivations involved too. Both UNUM and PRISMA stand to gain through taking ME off the list of recognized neurological disorders.

Maybe there is a "secondary gain" for the Wessely school in writing now so much about CBT. You could maybe see this as a strategy taken to further their aims in the face of progress made in research on CFS/ME.

This would not just include XMRV research but research by Dr. Light. My thoughts are that Wessely is writing to ensure that opinions regress even in the face of this progress.

Right now Wessely is trying to play the "victim." So Wessely has had threats made at him. No celebrity is exempt from this sort of thing, from rock stars to actors. You don't need to be busy forcing ME patients to exercise to get strange stuff like this. He should be lucky that the majority of us appreciate what suffering is and have a better mind than wish it with no regard.

At least that is the way I feel. For me, suffering makes me appreciate kindness. Even at my angriest, I don't find myself wishing for more death and misery- even on those who've caused it for me or the people I care about. Surely people have a right to feel afraid of Wessely and to wish themselves to not be hurt by his work. Maybe some people don't know the right way to get free from the abuse his work has led to. Fear tends to make us say things we don't otherwise. Still, people in the public eye get threats and stalkers and more. It would be naive for Wessely to take it so personally. In a way, that he fears these threats being carried out is an admission he thinks someone would have the motivation to actually carry out violence.

The real issue I see here I think is Wessely is using these threats to convey himself as a victim and make us seem like the perpetrators. It also incidentally gives him a reason to write when there is no good reason for him to pick up a pen (like there ever is).


I've been thinking hard about why these articles are coming out now. I wonder if it is because major strides in ME and neurological disease research are being made. Wessely and his fellow Wessely school members like Michael Sharpe, who has ties to UNUM must be very unhappy about this.

Therefore, I thought it would be worth taking a good look at UNUM and look at their history in using public relations, media and lobbying. I wanted to know the way this company handles things, what PR firms and lobbying firms they use and maybe also see if they have ties to media companies as well. I'll share what I've found so far.

Thanks to website called Fairness and Accuracy in Reporting I learned UNUM shares members of its board of directors with the board of directors of ABC/Disney.

http://www.fair.org/index.php?page=2870

Most media scholars consider connections like these as anathemas to getting out alternative points of view, like say the idea that ME is a recognized medical condition by the WHO, into the mass media.

From what I read about UNUM, I consistently see bold, negative strategies taken to assist it in bilking customers. There were so many complaints against UNUM, a class action lawsuit was launched against them. I can't believe what I found on the website for the lawyers who fought for patients against UNUM about the lawsuit and how UNUM handled it:

http://unumprovidentclassaction.net/

Before starting the case, we conducted many years of investigation and research into the practices of UnumProvident and its subsidiaries. Armed with our extensive knowledge of ERISA law and our many years of experience in conducting litigation on a large-scale basis, we commenced and pursued the largest ERISA disability class action lawsuit ever attempted.
Starting in November of 2002, we took the fight to UnumProvident and their attorneys, obtaining significant results and gaining protections for literally hundreds of thousands of people throughout the United States. For example:
Our legal Complaint, filed in the federal court in New York, was vigorously attacked by UnumProvident's lawyers, who attempted to get the case dismissed. We were successful in defeating UnumProvident on each and every legal issue raised by them.
When UnumProvident violated court orders to preserve documents and destroyed some of their internal company emails, Quadrino & Schwartz vigorously fought the company, obtaining a critical court decision in our favor.
Based upon the email destruction and UnumProvident's failure to fully secure other critical documents, we pressed UnumProvident to gather and secure other documents, and they resisted. When we brought this issue to the court, UnumProvident was ordered to promptly seize critical internal company files from the desks and offices of UnumProvident vice presidents and other managers, so that they could be secured for future review.

I also did some reading on the Consumer Affairs website about the UNUM class action lawsuit. On this website are very many UNUM customer horror stories. What I keep thinking when reading those stories from UNUM policy holders is how "the fruit doesn't fall far from the tree." Calling patient's crazy, and denying physical symptoms aren't just reserved for ME/CFS patients- this is treatment UNUM policy holders receive too.
:eek:.

I really start thinking of that fruit and tree proverb when reading this story about a woman with a back and neck injury being forced to lift and do things she physically couldn't by a physical therapist appointed by UNUM: (link: http://www.consumeraffairs.com/insurance/unum.html )

My wife is has a difficult time writing. My wife was employed with BB&T ins and became disabled due to back and neck operations. She was given a status of permanant disability, never to return to work by numerous Doctors. Her Pain Managnement Doctor is her main Doctor and does her disability. He clearly states she is disabled. Unum called their office and asked about my wife doing a function test. They talked to a new PT that my wife had seen twice. She stated she didn't know the level of her disability so that gave Unum the right to do a funtion test. We didn't think of this as a big deal.

For the test Unum sent basically a kid, looked young 20's, just a PT. He had her do things, crawl on the floor, lift boxes, ect. She complained several times of pain, but he was pushy, telling her to do just one more or were almost done. Twice her blood pressure went up due to the pain. He then made her start lifting boxes with weight. Her Doctor records says shes not to lift overhead. After doing this her arm started going numb and she complained. He added more weight and asked her to do more and she tried, but could not. She had to walk a treadmill, she asked to stop once because her feet were swelling, but he told her they were about done.
She finally took her shoes off which made him mad and said they had to restart the test. All of this was done in a sports injury gym in front of a group of men. Why crawling on the floor doggie style, she could see men starring. Sometimes the men would have to be asked to move. My wife was very embarressed by this, crawling doggie style in front of men. She said she felt like a stripper. You would think these test would be done in private considering the things they make you do...
:eek:

Here is another UNUM horror story which mirror our own horror stories:
MVA on 8-14-10 Hit by uninsured motorist Filed with UNUM on my Long Term Disability claim on 12-31-10. I have letters upon letters of claims from unum stating they couldn't get the right records from my doctors, & if they didn't get them my claim would be denied. They have harassed & irritated every Doctor I have had! My Doctors have yelled at me regarding Unum pressuring them!! Unum has now in 6-1-11 denied my claim. upon ridiculous claims of their Dr. seeing no disability! I have been through months of this. Harassing phone calls, rude people that can't even be civil.

Threats, Lies, Word twisting, Accusing me of lying & having psychological issues. Stating lies on their behalf, such as "no injury sustained at time of MVA". They can't claim that! For over a month they argued that i had to get them work restrictions from a doctor I only saw one time, BEFORE I was considered disabled by my PCP! They listed a chiropractor's opinion as their primary reason for denial. A chiropractor that a former lawyer for MVA had sent me to. Turns out both the Lawyer and the chiropractor knew the man that hit me causing MVA, and then opinions changed finally after they all discovered I didn't have a large UM policy on my Auto Ins!! They used his opinion over any of the other specialists i saw. Specialists extremely more qualified than the chiropractor. I have not wanted to report my latest Dr to Unum, being afraid they will make him mad as well!

If this weren't enough, UNUM was also found guilty of unlawfully trying to force its clients to apply for government disability insurance in the United States:
Unum found guilty of social security disability fraud by a federal jury

I highly recommend the ME/CFS community getting educated about public relations, media and keeping tabs on corporations because I feel this is going to be very relevant to advocacy work at this stage of the game.

Here are some of my favorite websites: :sofa:
http://www.sourcewatch.org/index.php?title=Portal:Global_Corporations
http://prwatch.org
http://corpwatch.org/
http://www.commondreams.org/
 

Min

Messages
1,387
Location
UK
Do you have proof that he sits on the board at Unum? I thought he had left.
 

Enid

Senior Member
Messages
3,309
Location
UK
I agree Annikki - this SMC (W) onslaught against ME sufferers does need looking into now. Don't think Wess is connected ny more but was see - http://www.meactionuk.org.uk/Notes_on_the_Insurance_issue_in_ME.htm The meactionuk.org.uk (marvellous) is full of the history of ME, and looking over the facts what stands out is the stranglehold this small group of Psyches managed to have over all others. In the light of recent events and research findings it seems he has chosen to "attack" the whole ME community. Feelings were high because they turned a blind eye to scientific research contradicting his theories. I've not heard of (nor has there been published) any physical attack on him whatsoever. The other side (ours) does need to told and known more widely.

For hysterics or militants or extremists read anyone who dare disagree with his (et al) opinions including other scientists. If we understand the history we can see the present situation more clearly to find a way forward in this disgraceful outpouring from the Media. The journalists or publications involved - why so partisan and ignorant of all the facts ? It comes across as an attempt to warn off ALL researchers with the most disturbing of this reporting - any threats he (et al) referred to of the past are present.
 

Esther12

Senior Member
Messages
13,774
Do you have proof that he sits on the board at Unum? I thought he had left.

Has he ever been on the board?

He has done some stuff for them, but I didn't think he ever held such a senior position.

imo, it's vital the any responses are very careful to ensure all the claims made are accurate. When Wessely makes misleading statements, he will be given the benefit of the doubt, because he's a professor. If any patients do, it will be taken as evidence that we're conspiracy theorists/hysterical/militant/whatever.
 

Angela Kennedy

Senior Member
Messages
1,026
Location
Essex, UK
Very interesting analysis annikki. Thank you very much for this.

I agree with Esther about the need to make sure claims are accurate of course. Wessely's alleged connection with UMUM being the issue here.
 

justinreilly

Senior Member
Messages
2,498
Location
NYC (& RI)
He claims his only connection to the insurance industry is very minor consulting many years ago.

He is always saying that we are misstating the facts that he is involved with insurance, so obviously this is very important to get exactly right. I don't think he is on the UNUM board. Can you pls confirm this and let us know what you found? Thanks.
 

alex3619

Senior Member
Messages
13,810
Location
Logan, Queensland, Australia
The following was just posted by J&S Campbell <sllc.jkc@VIRGIN.NET> on Co-Cure as a preamble to the reply:

"http://www.meactionuk.org.uk/Prof-H-Observer-letter.htm

This letter was submitted by Professor Hooper to the Observer, in
response to the article by Robin McKie "Chronic fatigue syndrome
researchers face death threats from militants", published on Sunday
the 21st of August 2011,
http://www.guardian.co.uk/society/2...igue-syndrome-myalgic-encephalomyelitis/print

Professor Hooper was contacted out of the blue by the reader's editor
of the Observer. They spoke at length on the telephone and the editor
asked Professor Hooper to respond to Robin McKie's article.

The editor indicated that the responses to the article were building
up into a feature length article for the Magazine section and
Professor Hooper agreed to submit a longer article as well as a
letter.


He received an acknowledgement from the reader's editor saying it was
there intention to use the letter but the following day he received a
further email from the same person to say it would not be published."

The bolding is mine. Maybe the Observer is about to publish a more balanced discussion.

Bye
Alex
 

Enid

Senior Member
Messages
3,309
Location
UK
Might be alex I agree - just have to wait and see I guess if they are capable of understanding the "story" on the other side.
 

Annikki

Senior Member
Messages
146
I just fixed my mistake. Wessely worked for PRISMA- he might still work for them. I don't have current information, so he may still work for PRISMA. It is Michael Sharpe who works for UNUM

I got so little sleep last night I screwed up. I have another autoimmune condition called interstitial cystitis and this one really hurts your ability to sleep. It's when I'm tired that I make mistakes. I did want to get that information out about UNUM. I'm digesting some of the many articles from Margaret Williams ME advocacy page, my head is spinning. There is so much to learn about the history of ME/CFS. I've only been aware of these issues since February, so I'm playing catch up. There is just so much to read about this- one article I'm working on is 400 pages. Please forgive this careless error, I'm overdoing it sort of. :( The rest of the information is still good. Counter strategizing was the point.

UNUM is involved with the Wessely school through Sharpe, not Wessely. Wessely is/was a corporate officer at PRISMA: The point I'm making still holds. All these doctors are intertwined with the insurance companies, and you can find parallels to ME research when you parse through records about these companies.

This is what Margaret Williams says about Wessely, Sharpe, UNUM and PRISMA:
In our Response to the MRC Research Advisory Group (RAG) Draft Document for Public Consultation on CFS/ME Research Strategy dated 17th December 2002 M.Hooper, EP Marshall, M Williams which can be viewed at http://www.meactionuk.org.uk/Initial_Comments.htm , we brought to the attention of the MRC what Dr Sharpe states in the UNUM company Report entitled Trends in Health and Disability 2002, including his confirmation of the involvement of PRISMA in the delivery of cognitive behavioural therapy for those with CFS/ME. It will be recalled that in this UNUM Report, Dr Sharpe advises that a psychiatric classification provides an alternative diagnosis of somatoform disorder for patients with medically unexplained symptoms such as CFS and that such a classification has important treatment implications. Many people are aware that psychiatrist Simon Wessely is a Corporate Officer (and is ranked higher than the Board of Management, being a member of the Supervisory Board) of PRISMA, the multi-national commercial healthcare company which in this UNUM Report Dr Sharpe confirms has already begun funding rehabilitation of UNUM policyholders with programmes of CBT on behalf of the NHS.
 

Enid

Senior Member
Messages
3,309
Location
UK
Are they still connected ? I noticed at the stage of PACE and Competing Interests it was stated 1) White has done voluntary and paid consultancy work for Depts Health and Work and Pensions and legal companies and a reinsurance co. 2) Sharpe has done voluntary and paid consultancy work for legal and insurancw cos 3) Chalder has done consultancy work for insurance cos and is author of Coping with Chronic Fatigue and co-author Overcoming Chronic Fatigue. Note the word HAS done. Still connected ? - I don't know but it is clear where their interests were.

Don't overdo Annikki and hope sleep will come better.
 

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
Thanks, Annikki, for your insight into how corporations and individuals use public relations and for your research on the corporate interests of Simon Wessely and cronies.

But, as Enid points out, your health comes first. Take it easy.
 

ukxmrv

Senior Member
Messages
4,413
Location
London
Annikki,

the UK ME patients are pretty clued up and have been reading about SW and his colleagues and links to insurance companies for years so it's old news to us.

Good for newbies of course but Margaret Williams and Prof Hooper are our heroes here. It's not "just" UNUM causing problems in the UK for ME patients but other insurance companies as well. It's far bigger than SW and PW having old links to insurance companies. Other psych lobby doctors have links as well.

UNUM is a far bigger problem here than links to specific doctors and the continuing abuse of ME patients who are insured with them. They are linked to the UK Govt department the DWP (who control benefits and some UK ME patients have huge difficulties getting the govt benefits due to them)

http://www.meassociation.org.uk/?p=242


We hoped to expose some of these insurance company links at the Judicial Review of the NICE Guidelines in 2009. However the Judge stopped consideration of much of the evidence. If you are interested have a read on the internet about that.

Good luck and hope you feel better soon.