Discussion in 'Latest ME/CFS Research' started by Firestormm, Mar 16, 2014.
First published by ProHealth 16 March 2014
I guess you have to be a US resident (or the person who died had to have been a US resident), but I don't know without asking or completing the survey.
I participated in one of their studies by questionnaire, so I wouldn't presume you have to be in the States. I'm glad someone will be looking at this important subject.
I have had a flick through the survey now. On page 3 of the actual survey, it asks about nationality, and then if from the USA which state etc. So it would seem you can complete it from anywhere in the world
Why aren't they just asking cfs researchers for this? That way they'd have med recs too.
I doubt that everyone who has died of ME/CFS had contact with a researcher.
But cfs researchers have access to the medical records for thousands of properly diagnosed pwcs.
Statistically the odds of getting accurate data would be better.
I don't see the point of putting those who've suffered the loss of a freind or family member through this.
You can also try a Google Site Search
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