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De Paul University - ME/CFS Mortality Study: Research Participants Needed

Discussion in 'Latest ME/CFS Research' started by Firestormm, Mar 16, 2014.

  1. Firestormm

    Firestormm Senior Member

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    First published by ProHealth 16 March 2014

  2. Firestormm

    Firestormm Senior Member

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    I guess you have to be a US resident (or the person who died had to have been a US resident), but I don't know without asking or completing the survey.
  3. justy

    justy Senior Member

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    I participated in one of their studies by questionnaire, so I wouldn't presume you have to be in the States. I'm glad someone will be looking at this important subject.
    peggy-sue likes this.
  4. Firestormm

    Firestormm Senior Member

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    I have had a flick through the survey now. On page 3 of the actual survey, it asks about nationality, and then if from the USA which state etc. So it would seem you can complete it from anywhere in the world :)
    Valentijn likes this.
  5. xchocoholic

    xchocoholic Senior Member

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    Why aren't they just asking cfs researchers for this? That way they'd have med recs too.
    Nielk likes this.
  6. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    I doubt that everyone who has died of ME/CFS had contact with a researcher.
  7. xchocoholic

    xchocoholic Senior Member

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    But cfs researchers have access to the medical records for thousands of properly diagnosed pwcs.

    Statistically the odds of getting accurate data would be better.

    I don't see the point of putting those who've suffered the loss of a freind or family member through this.

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