1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Join the National PR Campaign for ME: Power to the Patient (P2tP)
Have you had enough of all the neglect and abuse of ME/CFS patients? Gabby Klein says now is the time for a National PR Campaign for ME/CFS to impress a change. Join the Patient Revolution to restore power to ME patients ...
Discuss the article on the Forums.

De Paul University - ME/CFS Mortality Study: Research Participants Needed

Discussion in 'Latest ME/CFS Research' started by Firestormm, Mar 16, 2014.

  1. Firestormm

    Firestormm Guest

    Messages:
    5,824
    Likes:
    5,976
    Cornwall England
    First published by ProHealth 16 March 2014

     
  2. Firestormm

    Firestormm Guest

    Messages:
    5,824
    Likes:
    5,976
    Cornwall England
    I guess you have to be a US resident (or the person who died had to have been a US resident), but I don't know without asking or completing the survey.
     
  3. justy

    justy Senior Member

    Messages:
    2,679
    Likes:
    2,898
    U.K
    I participated in one of their studies by questionnaire, so I wouldn't presume you have to be in the States. I'm glad someone will be looking at this important subject.
     
    peggy-sue likes this.
  4. Firestormm

    Firestormm Guest

    Messages:
    5,824
    Likes:
    5,976
    Cornwall England
    I have had a flick through the survey now. On page 3 of the actual survey, it asks about nationality, and then if from the USA which state etc. So it would seem you can complete it from anywhere in the world :)
     
    Valentijn likes this.
  5. xchocoholic

    xchocoholic Senior Member

    Messages:
    2,872
    Likes:
    1,532
    Florida
    Why aren't they just asking cfs researchers for this? That way they'd have med recs too.
     
    Nielk likes this.
  6. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

    Messages:
    2,638
    Likes:
    1,993
    Midwest, USA
    I doubt that everyone who has died of ME/CFS had contact with a researcher.
     
  7. xchocoholic

    xchocoholic Senior Member

    Messages:
    2,872
    Likes:
    1,532
    Florida
    But cfs researchers have access to the medical records for thousands of properly diagnosed pwcs.

    Statistically the odds of getting accurate data would be better.

    I don't see the point of putting those who've suffered the loss of a freind or family member through this.
     

See more popular forum discussions.

Share This Page