Discussion in 'General ME/CFS News' started by Cheshire, Aug 14, 2017.
An excellent letter from David Tuller. I think it's really important because it demonstrates that the actions of NICE are being watched by scientists around the world. Dillon can't say now that he wasn't aware of the issues with PACE, since he has acknowledged receipt of this letter that spells it out very clearly.
Quite, it's important to realise a lot of people are holding their feet to the fire.
(not, as you understand, in a literal manner, for the avoidance of doubt for any lawyers for QMUL or NICE reading)
And the letter might even have helped make him aware of some issues too?
I think that could be very true.
Many years ago I remember seeing Brighton Marina being built, which comprises massive concrete pillars butted up to each other, going out into the sea. A huge crane-on-rails was used to build each new pillar, and once complete the railway was extended onto it, so the crane could advance further, to build the next one.
David's letter is a bit like that, and superb for it. Each question forms part of the preparatory work for later questions, and as such it is an excellent educational work in its own right. Just what the doctor ordered!
Is that why the berthing fees are so extortionate!!
Good letter, with a hint of a threat. If NICE makes a bad decision this will be publicised.
There's no point adding a mealy-mouthed disclaimer like that - as far as Sir Simon is concerned you've as good as admitted that you're actively plotting to have him burned at the stake.
You should expect your post (highly edited and taken completely out of context of course) to appear in one of his powerpoint presentations in the very near future.
Seriously, @Esther12 ? He doesn't want to become aware of any issues. He will go to any lengths to avoid becoming aware of any issues.
Which is precisely why he and others with relevant authority need to be made aware, and very overtly, so that pleading ignorance is not an option.
Sadly, these people, and the system of governance that allows such behaviour, are going to have to be publicly shamed into doing the right thing. They have had plenty of chances over the years to do it voluntarily, and have completely failed to do so. There is no acceptable plea left they can enter, not even in mitigation.
In order for them to be publicly shamed the public would have to give a toss about us.
They don't have to give a toss about us for public shaming to work. They just have to give a toss about being exposed as negligent, incompetent, or dishonest, and the consequences of that for their prospects in the career and honours game.
I found this comment from @Graham very interesting:
Sir Andrew Dillon's reply was classic British snootiness. Does he have any idea how ridiculous he looks to the rest of the world?
Could be .
It is actually why I also particularly like, and recommend, your article "PACE team response shows a disregard for the principles of science", because it follows the same educational principle, as well as making its own strong case.
He's pulled the 'deniability rug' from under NICE with a swift flick of the wrist. Neatly done.
Trouble is, I'm not sure they give a sh*t.
Reckon they do. At the moment they can still get away with their shit. But we're seeing more favorable coverage of our plight as of late. These people do seem to be very allergic to bad coverage about themselves.
I'm not sure it's up to them to give a **** is it? Since when do we have consider the feelings of the 'aggressor'? It's what it can prove / illustrate to the wider public that matters.
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