Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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David Tuller to appear at Forgotten Plague premier in Amsterdam, Netherlands, Feb 28

Discussion in 'General ME/CFS News' started by Sasha, Feb 14, 2016.

  1. Sasha

    Sasha Fine, thank you

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    If I were in Amsterdam, I'd go just to thank David Tuller!
     
  2. mango

    mango Senior Member

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    Via Maija Haavisto onTwitter https://twitter.com/DiamonDie/

    Waiting for #forgottenplagueNL to start. Seated behind Tuller and Visser, next to @Gooische_Vrouw.

    Powerful film, lots of sobs to be heard in the audience, especially when Whitney Dafoe was shown. #forgottenplagueNL

    Most of the interviews could have been longer, since the movie isn't so long anyway. Hillary Johnson was great. #forgottenplagueNL

    Tuller and Visser are engaged in a discussion about terminology/names. #forgottenplagueNL

    Visser talks about how both physical and mental exertion makes #mecfs much worse. Wonder if someone here doesn't know? #forgottenplagueNL

    David Tuller from Berkeley, prominent PACE critic, is speaking now. Got interested in #mecfs because a friend was sick. #forgottenplagueNL

    Tuller: [Belief in GET] is an ideology, as it's not based on facts. Science not based on facts is kind of like a cult. #forgottenplagueNL

    Tuller: I've shown the PACE study to my colleagues at Berkeley and they're like "What? How can this get published?" #forgottenplagueNL

    Tuller: Even if their findins were accurate, which they're not, they did not have informed consent. Ethical lapse. #forgottenplagueNL

    Tuller: The PACE authors are very aware their answers are inadequate. There's a court hearing in the UK in April. #forgottenplagueNL

    Tuller: In the next year there's going to be big movement to get rid of this trial. #forgottenplagueNL

    Tuller: I have to be careful when speaking in public because I'm so enraged, I can be defamatory and can be sued. forgottenplagueNL

    I asked David Tuller how long he thinks it will take Lancet to retract the trial (cf. Wakefield!). He hopes this year. #forgottenplagueNL

    Tuller believes Wakefield autism/vaccine retraction makes Lancet more resistant to retracting PACE, too. #forgottenplagueNL

    Tuller: What the PACE researchers have done is disgraceful and horrifying. #forgottenplagueNL

    David Tuller is a warm, compassionate, humble guy. Not about ego like J... *cough* C... *cough*. #forgottenplagueNL

    @fairmileheed He also said a lot of interesting stuff off-record. Now he's being interviewed for Dutch ME magazine.

    Sorry for the flood earlier. To clarify, PACE is a fraudulent study published in Lancet, threatening the lives of millions #mecfs patients.

    https://twitter.com/DiamonDie/
     
  3. JAH

    JAH Senior Member

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    Great stuff here, thank you @mango
     
    Invisible Woman, Esther12 and mango like this.
  4. Bob

    Bob

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    Last edited: Mar 5, 2016
    Riley, mango, Invisible Woman and 2 others like this.

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