Discussion in 'General ME/CFS News' started by Countrygirl, Nov 20, 2017.
there is a phrase word used to describe people like Crawley
the first word is "arrogant"....
Tremendous work by David, Thank you so much for your dogged advocacy, which sadly needs to continue.
And thanks @Countrygirl for posting
It would have only been better if a camera had of captured Crawley's reaction. The press would've loved it.
................er..................wait for it!
I was watching her.
Her face went rigid and changed to a putty grey. I don't think she was too happy!
Jottings from my notes from the time David left the room. (I cannot quote each word exactly as I was scribbling as fast as I could)
As an aside, David forgot to mention that EC was introduced to us all as an 'outstanding scientist' who serves as a role model for the scientific community.
David left the room and was escorted from the building, but was able to get back in.............
(Meanwhile 'my colleague and I were torn...........we were going to march out in solidarity with David, but didn't want to stop filming and we wanted to hear how EC was going to respond.)
Questions from the audience:
What is it about this illness that makes people behave like this?
Why on earth do these people behave like this?
What a brilliant example of what you have to put up with!
Yes, said EC to the audience. Dreadful people or words to that effect...need to check the film if audible at that point.
‘Are there any more activists in the room’, demanded EC looking around.
I took an intense interest in the floor tiles and my colleague kept filming.
It got very hot.
I had to have a restraining ? order sent to his university said EC. The trouble is a defamation suit is so expensive.
Murmurs of sympathy from the audience.
Something about American lawyers.
I have gone/was told to go to the police over him.......
Lots of suggestions from the audience. So terrible and so, so brave. What a role model for us!!!.......
Man who escorted DT out headed for us.
Are you activists?
We both smiled sweetly. Well, he was a nice chap caught up in a situation he didn't understand.
My colleague raised his camera.
‘You must not mention any of this on social media or forums and you must not use that film.
He waited for an agreement.
Said again Do you understand?
We both agreed that we understood what he was saying.
Well, we both speak English after all.
He got it!
We weren't agreeing to not posting.
Paedophiles and war criminals like to keep their crimes secret too just like people who abuse and damage families and children.
We told him we would like to invite Esther to have lunch with us to discuss the situation further.
We also invited him.
Strangely, both invitations were declined.
Also David didn't mention that EC has been given further funding which she is going to use for a larger LP study.
Good work @Countrygirl you well scary ME activist you
I bet the security guy was trembling and shitting himself when he approached you, given the account he had just heard from EC he had probably called for armed police back up and was probably expecting you to bring out a knife from under your skirt and hold the whole audience hostage.
I am surprised it did not make front page of Exeter's Express and Echo, now that would have shocked your neighbors, seeing your friendly face on their front page thinking you were a lovely friendly neighbor and all along you were an ME terrorist
What makes people stand up in the Q and A and ask questions asking you to back up your claims with data?? Errr, Urmmm....the scientific method!
Poor Esther makes up a pack of delusions and then some people ask her to back up her claims.
"Get out if you are going to ask me questions in the Q and A I don't want people in the audience alerted to"?
A find by TGOP that has some relevance to this thread:
Where / when will the video be available? As we're learning from recent wonderful research symposium events, we can learn so much from seeing scientists present their work, and their open and honest response to legitimate questions.
- Really? Would this be for adults this time, and do you have any details? eg. who is funding it? Thanks......
She didn't give any details, but it must be for children.
Interestingly, she said the children really didn't want to do LP.
The audience were puzzled by this.
EC explained that it was because it was so intensive and lasted three days which would be a struggle for them.
She repeated that she thought she would disprove that LP would work and was surprised that it enabled them to attend school 4 days a week eventually, rather than 3, which those who hadn't done LP were achieving.
I was struck by the fact that sick children were being pushed to do a three-day intensive course, which she recognised was overwhelming for them, while she expected the trial to fail to show positive results.
She repeatedly stated that GET does not harm ME patients and the 'activists' are mistaken.
She also stated that she has proven that ME children undertake more quote 'rigorous exercise' per day than their healthy counterparts.
Here are a few of my hastily scribbled notes (she talked very fast and I couldn't look up at the slides)
I am waiting to hear when it can be released, @PeeWee
There was repeated mention of Mums pushing for more intensive treatments...GET/CBT etc.
EC also stated that she has found that when she Skypes the children that she finds it difficult to get them in view as they seem to hide elsewhere in the room.
She commented on the surprising discovery that children apparently don't like using skype with her.
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