Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Danish ME/CFS patients' health-related quality of life (EQ-5D) and life satisfaction from 2013-2014

Discussion in 'Latest ME/CFS Research' started by Bob, Mar 15, 2014.

  1. Bob

    Bob

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    Danish ME/CFS patients' health-related quality of life (EQ-5D) and life satisfaction from 2013 to 2014.
    http://www.me-foreningen.dk/images/stories/me-cfs/pdf/me rapport_12032014_final.pdf

    The above report is in Danish, but there's a short English explanation here:
    http://www.followmeindenmark.blogspot.dk/2014/03/eq-5d-scores-for-danish-mecfs-patients.html

    [​IMG]
     
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  2. Valentijn

    Valentijn The Diabolic Logic

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    As a somewhat useful reference point, the 6th one down (Sclerose) seems to be MS. So a somewhat similar group of symptoms, disability, and range in severity, but with a significantly higher quality of life.
     
    Bob likes this.
  3. Snow Leopard

    Snow Leopard Hibernating

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    Why oh why didn't they use the EQ-5D+? :(
     

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