Dan peterson starting own foundation

[fla]

On their website they are looking to fund a study about "Molecular mimicry-induced autoimmunity and the determination of viruses causing this immune response". Very promissing research and definitely worth investigating this possible cause for M.E..

 

[Tristen]

Absolutely a good thing. I don't see Simmaron as taking anything away from other researchers, on the contrary, it will be adding to the quest for cause and cure. Dr Peterson's many years of experience working with this disease, plus his massive bio bank and records data base are priceless. He's seen and followed thousands with this disease for over 25 years. I'm grateful he remains front lines in the fight. Whatever the conflict with WPI was about, it's irrelevant in as far as his commitment to forwarding research and treatment for this disease. We need both of them on our side.
He is one of the very few me/cfs physicians willing to bill Medi-Care, and allow billing for those who cannot pay. The man is a highly qualified me/cfs doctor and wonderful human being. I'm delighted to see him going forward with his own research facility. Huge loss for us if he didn't.

 

[mellster]

Very good! I think this molecular mimicry needs to be researched. I have always suspected that there is an auto-immune component involved (possibly triggered by viral load).

 

[Tristen]

Very good! I think this molecular mimicry needs to be researched. I have always suspected that there is an auto-immune component involved (possibly triggered by viral load).

I've thought so too. supposedly my labs showing zero-undetectable VIP (Vasoactive Intestinal Peptide), with certain other hormones being elevated, is indicative of an autoimmune process. More yet to be revealed on this.

 

[heapsreal]

dr don staines is probably the one pushing the mimicry theory, he seems to be the one interested in an autoimmune factor in cfs.

 

[ixchelkali]

I agree with Willow. We need all the researchers we can get who are in it for patients.

Dr Peterson has been working for us patients for over 25 years. He's not one of the ones getting rich off patients; on the contrary, his practice has been in the red more than once because it paid for tests he thought were needed that insurance wouldn't cover. He's not in it for fame and glory or to enhance his reputation, since he's been called a quack and worse because he insists that ME/CFS patients are physically ill and that there was an epidemic in Incline Village. When news reports of the epidemic came out, his family were harassed and threatened and the local business community and medical community ostracized them, and still he stuck with his patients. I think he's more than proven his integrity and loyalty to ME/CFS patients, and that it isn't right to impugn his motives just because we don't like the results of a study he worked on.

I think it's absurd to imply that Dr Peterson has been "got at" or corrupted by money (not referring to anyone on this thread, but to the innuendos that have been floating around). If he's wrong about XMRV, well, honest people can make mistakes. It doesn't mean he's gone over to the dark side. After all he's done for us over the years, I think we owe him the benefit of the doubt, and if we don't give it to him, then it reflects badly on the patient community more than it does on him.

Simmaron Research has gotten a grant from the HHV-6 Foundation to study "Chromosomally Integrated HHV-6 Subjects Prior and Post Valcyte Treatment."

 

[SOC]

I agree with Willow. We need all the researchers we can get who are in it for patients.

Dr Peterson has been working for us patients for over 25 years. He's not one of the ones getting rich off patients; on the contrary, his practice has been in the red more than once because it paid for tests he thought were needed that insurance wouldn't cover. He's not in it for fame and glory or to enhance his reputation, since he's been called a quack and worse because he insists that ME/CFS patients are physically ill and that there was an epidemic in Incline Village. When news reports of the epidemic came out, his family were harassed and threatened and the local business community and medical community ostracized them, and still he stuck with his patients. I think he's more than proven his integrity and loyalty to ME/CFS patients, and that it isn't right to impugn his motives just because we don't like the results of a study he worked on.

I think it's absurd to imply that Dr Peterson has been "got at" or corrupted by money (not referring to anyone on this thread, but to the innuendos that have been floating around). If he's wrong about XMRV, well, honest people can make mistakes. It doesn't mean he's gone over to the dark side. After all he's done for us over the years, I think we owe him the benefit of the doubt, and if we don't give it to him, then it reflects badly on the patient community more than it does on him.

Simmaron Research has gotten a grant from the HHV-6 Foundation to study "Chromosomally Integrated HHV-6 Subjects Prior and Post Valcyte Treatment."

Excellent post, ix! Thanks for stating the facts so clearly.

 

[valentinelynx]

Thank you, Tristen. I think the folks who want to throw Dr. Peterson out with the bathwater, so to speak, because of an unknown dispute with people at WPI, should take a look at his historical involvement with this illness. At no point has he ever shown evidence of being "in it for the money." In fact, you could probably say he's thrown away any chance of being wealthy or respected in the world of Big Medicine because of his dedication to what was named CFS by the CDC after they visited the practice of Cheney & Peterson in Incline Village to see those weird patients back in the '80s. I understand folks wanting WPI's findings to be the final word. Maybe they will be. But that doesn't mean that they are the only Good people, and anyone they argue with is Bad. It strikes me as odd (but human, I guess) that with the arrival on the scene of Mikovits et al just last year, suddenly the WPI is the arbiter of truth, and all the dedicated, but underfunded researchers and clinicians who've been doing work in this field for decades are suddenly chopped liver. Don't misread me, I hope that the HGRV findings are real, and I see more and more evidence that they are. But, that doesn't mean everyone else is wrong, or misguided. Everyone's feeling a different part of the elephant.

 

[taniaaust1]

Dr Peterson is a very dedicated doctor to ME/CFS. He were there in the heat with Cheney back in the 80s in Incline Village as others here have stated. He's never wavered in this and trying to help us and backing us. He's one of the most experienced ME doctors on this planet.
He's not just been seeing ME/CFS patients all this time but also worked hard to bring worldwide understanding by doing seminars all around the world at times on ME. I once attended one in Australia years ago in which he was over here, trying to teach and inform our doctors (he gave lectures around Aust.) and I think he's been here again since then. to inform other doctors and the ME/CFS about his findings and other findings...

Im highly greatful to him that he's forming a foundation.

Whatever has gone on between him and the WPI... what I do know is these are both dedicated researchers who are dedicated to finding the physical cause and treat ME/CFS.

As far as his research taking money from other research.... well who's to know which research will end up giving the biggest leads. All research into physical causes of this is important and every different group of researchers are looking into the physical aspects of it all and the physical causes in a slightly different way. We all know just how complex this illness hence we need to have more research then just in one area (eg XMRV).

 

[taniaaust1]

I think this is good news. Sounds as though he can draw on resources in Australia, which hasn't had much going on yet in terms of research (far as I know). Look, a number of people have been working largely on their own, developing their ideas and the approach that seems most key to them. Think of hunting dogs, as a metaphor. Let them fan out and try to pick up the scent. Maybe later on, when one of these scientists, doctors or clinics picks up an undeniable trail, the others will start to coordinate more in a teamwork manner. It is a process! At least he hasn't quit the field and just retired, but is taking the initiative to pursue his own hypotheses. I am for cheering them all on!

Australia has had some of the best ME/CFS research going on in the world, over here one dont tend to see psychological research, its all great research into other factors of this illness. please check out the ME/CFS study list I started to compile some time ago of Australia studies at http://forums.phoenixrising.me/show...+Project:Australian+CFS+ME+History+and+Events

We also have two different lots of ME/CFS research teams in Australia... the Bond uni ones (in NSW?) and the Adelaide ME/CFS research group in Sth Australia.. both have made new ME/CFS findings at times. Thing is like all places world over.. funding is a big issue with personal donations playing a big part. Our Aussie researchers and doctors, a few of them have teamed up with other ME/CFS experts in other places of the world and are working together doing studies.. sounds like Peterson has joined the rank of those.
Dr Meirier (the Belgium ME specialist also has grouped with expert(s) over here and Australia money is helping fund his research too. For a country who hasnt got anywhere near the size of population as America and many other countries, we are doing real well in comparison as far as what our research is getting out. (we could do a lot more with more funding)

 

[alex3619]

Hi Tania, Bond University is at the Gold Coast, Queensland, but I think some of their collaboration is with New South Wales. Bye, Alex

 

[taniaaust1]

Hi Tania, Bond University is at the Gold Coast, Queensland, but I think some of their collaboration is with New South Wales. Bye, Alex

ah yeah, thanks.. I think that is where I was getting confused. A lot of collaboration is going on with the various things. Its good.

 

[Glynis Steele]

Australia has had some of the best ME/CFS research going on in the world, over here one dont tend to see psychological research, its all great research into other factors of this illness. please check out the ME/CFS study list I started to compile some time ago of Australia studies at http://forums.phoenixrising.me/showw...ory+and+Events

Hi Tania,

There is also this one you might want to add to your list, it's a follow up of the d-lactic acid study in CFS patients, and other bio-markers and it's being done by Prof Paul Gooley, Dr Henry Butt, Dr Ian Buttfield, Dr Neil McGregor, Dr David Stapleton and Mr Christopher Armstrong at Melbourne University.

http://sacfs.asn.au/download/Lactic acid study 2008 - Ethics Application.pdf

Glynis x

 

[Tristen]

I agree with Willow. We need all the researchers we can get who are in it for patients.

Dr Peterson has been working for us patients for over 25 years. He's not one of the ones getting rich off patients; on the contrary, his practice has been in the red more than once because it paid for tests he thought were needed that insurance wouldn't cover. He's not in it for fame and glory or to enhance his reputation, since he's been called a quack and worse because he insists that ME/CFS patients are physically ill and that there was an epidemic in Incline Village. When news reports of the epidemic came out, his family were harassed and threatened and the local business community and medical community ostracized them, and still he stuck with his patients. I think he's more than proven his integrity and loyalty to ME/CFS patients, and that it isn't right to impugn his motives just because we don't like the results of a study he worked on.

I think it's absurd to imply that Dr Peterson has been "got at" or corrupted by money (not referring to anyone on this thread, but to the innuendos that have been floating around). If he's wrong about XMRV, well, honest people can make mistakes. It doesn't mean he's gone over to the dark side. After all he's done for us over the years, I think we owe him the benefit of the doubt, and if we don't give it to him, then it reflects badly on the patient community more than it does on him.

Simmaron Research has gotten a grant from the HHV-6 Foundation to study "Chromosomally Integrated HHV-6 Subjects Prior and Post Valcyte Treatment."

Very well said. I would only add that it's also a testament to his integrity that he's not distracted by the recent vitriol. I don't waste much energy on it either.