The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Daily Mail - yoga cures myalgic encephalomyelitis

Discussion in 'General ME/CFS News' started by Min, Feb 2, 2015.

  1. Min

    Min Guest

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    jimells and CantThink like this.
  2. Soundthealarm21

    Soundthealarm21 Senior Member

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    Lol "Daily Mail".

    Not even going to bother reading it
     
    redviper, svetoslav80 and Raines like this.
  3. Wayne

    Wayne Senior Member

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    I just checked out the article and found it interesting and plausible. Here's the wrap-up at the end--looks like she did a lot more than yoga.
    -
    Slowly, I began to feel stronger and was able to do some of the stretches. But it was the mindfulness yoga brought that affected me more deeply. I began to feel more in tune with my body.

    I realised to recover fully I had to rethink my life. I changed my diet, giving up sugar, dairy and wheat, and started reading more, something I’d not done for years. I also left my husband of four years; it wasn’t easy and he’d done nothing wrong, but I wasn’t happy any more.

    I loved yoga so much that I signed up for a three-and-a-half year teacher training course with the British Wheel Of Yoga and qualified in 2008. Yoga didn’t just change my life — it gave me my life back.
     
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  4. alex3619

    alex3619 Senior Member

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    The ultimate supreme cure is obvious. NOT reading the Daily Mail can cure you of anything. There, I said it. Will they report that?
     
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  5. worldbackwards

    worldbackwards A unique snowflake

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    I think if they put in enough versions of ME, eventually a panel will have to choose what the real one is, in a kind of 'Would I Lie to You' type scenario. This is the third in the last few weeks. I'm feeling that Daily Mail love like a savage beating.
     
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  6. Hip

    Hip Senior Member

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    Well, whether it was yoga, her change in diet, or some other unknown factor that led to her cure from ME/CFS, one thing is for sure: she certainly does not have ME/CFS now; if you read her website, you'll see she has run four half marathons.
     
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  7. minkeygirl

    minkeygirl But I Look So Good.

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    One comment says:

    Myalgic Encephalomyelitis is a neurological illness like MS and Parkinsons. It is not possible to recover from a neurological illness by yoga or any other form of exercise; this lady was misdiagnosed.
     
    Kyla, justy, beaker and 12 others like this.
  8. Wildcat

    Wildcat

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    .

    I don't find the story plausible at all. I had 20 years experience of hatha yoga (and Iyengar) and meditation, before ME. Hatha yoga is far more demanding than it looks, especially for beginners.

    Six months into severe ME, trying doing just a few basic gentle floor postures nearly finished me off. I ended up immobile for days from doing what was really a tiny amount of yoga. I couldn't move a muscle, just my eyelids occasionally. I had no care and was basically in and out of unconciousness for days, unable to get out of bed or phone for help. Thats days without food or help of any kind. I felt I was fading away and feared that I would just fade away and die. In fact the yoga was damaging.

    Although I was bedbound and immobile a great deal of the time over the next years, nothing compared to the extreme response to what (in a healthy state) would have been a brief but energising yoga practice. I didn't know what I was ill with at the time.
    .
    Also, despite decades prior experience of meditation, it was not even possible to meditate for the first 5 years of ME.
    .
     
    Last edited: Feb 3, 2015
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  9. Gingergrrl

    Gingergrrl Senior Member

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    Is the "Daily Mail" comparable to something like the "National Enquirer" in the US? I'm trying to get a sense of what it compares to.
     
  10. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    Best as I can tell, the "Sun" (which just reported that stopping eating junk food--written by a food psychologist--"cured" ME) would be most like the "National Enquirer". "Daily Mail" would be slightly less bad (probably no aliens or bigfoot, and less vicious attack pieces)

    http://en.wikipedia.org/wiki/Supermarket_tabloid#Red_top
     
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  11. Soundthealarm21

    Soundthealarm21 Senior Member

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    It is one of the worst papers there is. Absolutely ruthless in publishing unfounded claims and just making stuff up to sell papers.
     
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  12. IreneF

    IreneF Senior Member

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    I stopped yoga when downward dog triggered POTS symptoms.
     
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  13. Forbin

    Forbin Senior Member

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    Articles like these seem to suggest a different level of cultural awareness of ME in the UK (as opposed to the US).

    Although there was a considerable amount of US press attention (mainly in magazines) given to CFS, née Chronic EBV, in the 1980's, so far as I am aware, articles on overcoming CFS, let alone ME, are all but unheard of in the mainstream or even tabloid press in the States today. A news presenter on US TV could never introduce a story by just using the terms "CFS" or "ME" without spelling out what the abbreviations meant. Though some people would have heard of "chronic fatigue syndrome" in the US, I don't think the percentage would be very high.

    To an outsider, this seems like a double-edged sword in the UK. The greater awareness is potentially for the good, but it seems mainly driven by those who would like to sway public opinion toward the "nothing to see here - just some emotional/motivational issues" point of view.

    The two issues may go hand in hand. Where there's little public awareness, there's little need to control the message. Ironically, the more you tell the public it's nothing... the more you have to tell the public it's nothing.
     
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  14. Gingergrrl

    Gingergrrl Senior Member

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    @Forbin I totally agree with what you said and that's why I was wondering what kind of newspaper or magazine the Daily Mail might be b/c I have never seen a story about CFS in a supermarket tabloid. And the term ME is still unknown here. I guess it is better to be invisible than to have negative press?
     
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  15. Hip

    Hip Senior Member

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    Perhaps whoever that commenter was should read this PR article on a study looking at recovery from ME/CFS arising after mononucleosis (glandular fever): according to the study, 11 years on from getting sick, 28% were working full-time, and 13% rated themselves as recovered.

    There was no mention of medications or therapies used to achieve this recovery, so presumably these recoveries were spontaneous, albeit occurring slowly over 11 years.

    So in fact it looks like it is indeed possible to recover from a neurological illness, even without yoga.

    I guess though if ME/CFS can slowly go into remission, and someone is following a particular therapy like yoga during that time, they may assume the therapy was the cure, whereas the cure may have been spontaneous.



    I do wonder though whether enterovirus-induced ME/CFS may be more difficult to fight off than EBV-induced ME/CFS.

     
    Last edited: Feb 2, 2015
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  16. Snow Leopard

    Snow Leopard Hibernating

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    Quality, not quantity when it comes to comments! ;-)
     
  17. Purple

    Purple Bundle of purpliness

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    This would be very interesting to research.
     
    WillowJ likes this.
  18. Gingergrrl

    Gingergrrl Senior Member

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    @Hip the people in that study got sick with mono at a younger age which I think was in their favor. In addition, they all self reported as having had "mono" none had an EBV test so it is unclear what they truly had as their original trigger. This also seems totally unrelated to the claim that yoga can heal ME.
     
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  19. taniaaust1

    taniaaust1 Senior Member

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    Looking at that she probably had an issue related to diet .. Candida, gluten sensitivity, food intollerances or even something like hyperinsulinemia which can greatly affect some people and cause a lot of symptoms.

    I can believe many of these people may of been quite sick but I dont think they had ME.
     
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  20. taniaaust1

    taniaaust1 Senior Member

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    I too had yoga experience before getting ME.. I practiced yoga of various kinds and also taught meditation at a level higher then beginners classes.

    When I got ME I couldnt do the hatha yoga classes I used to do and ended up trying to do a class with elderly people. The oldest in the class was 97 years old I think. She could do more then I could do (thou I'd had years of experience of doing yoga).

    Any standing postures were dangerous for me (I no longer had any balance) and many other postures were bad too esp when if I was balanced on a arm in some way, my arm could just give out sending me nose diving to the floor. I almost ended up with a blood nose in a yoga class!!

    Thou I was an experienced meditator, I lost the ability to meditate with the ME. I couldnt figure this out until my EEG scans showed my brain waves dont react how they should when you shut your eyes and relax. I had ME EEG abnormalities.
    ....

    I also had to give up tai chi which I'd done for years. I had to give this up before I even got the OI. After I got ME I started to get very painful knots in my back which restricted my movement during Tai Chi classes and once there.. a knot could last for ages. I had a painful back knot for many many months after a class.
     

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