Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Daily Energy Pattern

Discussion in 'General ME/CFS Discussion' started by gregh286, Jul 16, 2015.

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Daily Energy Pattern

  1. Worst upon wakening....with gradual improvement over the day.

    9 vote(s)
    56.3%
  2. Wake up and remain constant energy till bed time.

    1 vote(s)
    6.3%
  3. Spring out of Bed in morning with a gradual energy decline over the day.

    3 vote(s)
    18.8%
  4. Energy all over the place....no particular pattern.

    3 vote(s)
    18.8%
  1. gregh286

    gregh286 Senior Member

    Messages:
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    794
    Londonderry, Northern Ireland.
    Hi,
    Something always bothered me about CFS/ME was the strange clock pattern my energy cycle nearly always follows.
    A complete zombie upon wakening...(I am not talking the type thats hard to get up.....the type that you feel half human...overwhelming awful)....with marginal improvement during day....I know many are like this on the forum.

    I have a normal cortisol pattern that is raised morning and falls in evening....so not inverted as above would suggest.

    Surely if CFS was a viral/ bacterial origin it shouldnt follow a circadian rhythm.?

    I think this holds large clues to what happens in our body during the sleep cycle that is greatly overlooked.

    We must be only humans on planet where sleep is detrimental.
    I have laid in bed for nights wide awake and have been X10 better the next day than I would have if I had slept....(normal without sleep type tiredness obviously)
     
    Last edited: Jul 16, 2015
    girlinthesnow likes this.
  2. Valentijn

    Valentijn WE ARE KINA

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    Springing out of bed is very poor phrasing.
     
  3. gregh286

    gregh286 Senior Member

    Messages:
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    Londonderry, Northern Ireland.
    Maybe in your country but its a general term in uk.
     
  4. AaroninOregon

    AaroninOregon noob

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    Hippietown
    Option 1 is closest to my typical day, although I usually have a crash in the late morning to early afternoon....somewhere between 11:30 am to 3 pm.

    Typically after 4pm is when I feel best. o_O
     
  5. Valentijn

    Valentijn WE ARE KINA

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    I feel worse in the evening, but I do not even remotely spring out of bed. It's equivalent to suggesting that people doing better in the evening are then dancing in the streets.
     
  6. gregh286

    gregh286 Senior Member

    Messages:
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    Londonderry, Northern Ireland.
    Doesnt mention dancing in the streets. You are putting words into it. Lets agree to call it "rise from bed"
     
    Valentijn likes this.
  7. Snookum96

    Snookum96 Senior Member

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    Ontario, Canada
    I'm usually at my worst in the middle of the day. The first hour or so is not as bad then about 8 am until supper really sucks and then the evening is typically my best part of the day.
     
  8. Hanna

    Hanna Senior Member

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    Jerusalem, Israel
    1. I get-up like a zombie, early in the morning (5h30-6h00)
    2. Best time 10-12 a.m
    3. Then I run low on battery untill 6-8.00 pm (potatoe couch mode) - worst time= afternoons
    4. tiny burst of energy untill before going to bed

    But... salivary cortisol graph is not inverted (just begin low, then sinks and rise somewhat late in the day).
     
  9. Sidereal

    Sidereal Senior Member

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  10. trails

    trails Senior Member

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    New Hampshire
    My daily pattern is similar/identical to those expressed by @Jodie1980, @AaroninOregon, and @Sidereal. Unfortunately, as structured, the poll doesn't seem to provide an appropriate response to this behavior.
     
    AaroninOregon likes this.
  11. Tammy

    Tammy Senior Member

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    1,379
    New Mexico
    My energy pattern is almost identical to Hanna.
     

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