1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The Chronic Fatigue Initiative and Interview with Mady Hornig
In a follow-up article to the recent IACFS/ME conference presentation in San Francisco, and after speaking at length with Dr. Mady Hornig, 'searcher' delves deeper into the impressive work being completed by the Chronic Fatigue Initiative, and focuses in on those cytokine results ...
Discuss the article on the Forums.

Cystitis or Crohn's or ????

Discussion in 'Gastrointestinal and Urinary' started by citybug, Jan 3, 2012.

  1. citybug

    citybug Senior Member

    Messages:
    522
    Likes:
    36
    NY
    I've been to a lot of doctors so time to ask the real experts. I had kidney stones last Nov. and Feb.(with kidney infection) then after the stones had continuing pain in spot in lower right abdomen. Last spring gyno said she thought is was a full cecum. Over few months the pain in this spot went away. Also I seemed to be getting UTI's and sometimes kidney pain, first positive then culture negative. After another bout with fever, kidney pain and sulfa drug the pain in this area returned. This fall had kidney pain attacks every 2 to 4 weeks. The last few attacks I could feel started in this one spot then got worse and worse until radiated into the back and kidney area. I was taking d-mannose which i found in the cystitis posts. Urologists and other doctors say uhuh... When i had the first stone they took 2 cat scans because one was out of focus. I didn't want the second. Had a third with Feb. stone because was almost passing out for days, I thought had to be blasted.

    So does cystitis feel like kidney stone pain, goes to about 8 in pain from about a 2. I'm looking for someone with the same kind of pain, like a small coal until it catches on fire. Or who can say that is not typical of cystitis or colitis or diverticultis. Feels like need emergency room. Brings on chills and vomiting. On wikipedia same area as appendix and also common area for crohn's. Definitely seems inflammatory. Usually associated with some uti tingling, but also have swollen joints, eye inflammation and eczema with attacks associated with colitis, have been saying all year seem like a syndrome together. Went to gastro, said hydrate (which I have already been doing for POTS or stones) this includes potassium which would make cystitis worse. Feel the spot when I lift my knee or any pressure in area.
  2. Nielk

    Nielk

    Messages:
    5,075
    Likes:
    4,611
    Queens, NY
    Hi citibug,

    I suffered from Crohn's for 15 years. (am in remission now) There is a sure way to diagnoze it today. You have to go to a GI doctor and have a colonoscopy performed. If it's Crohn's, they should see an inflamation in the Ileum. They can then take a biopsy of it and give you a definitive diagnosis of Crohn's.

    Good luck,
    Nielk
  3. Waverunner

    Waverunner Senior Member

    Messages:
    972
    Likes:
    759
    Hi citibug,

    since you are in a lot of pain, I would highly recommend to see a doctor again till you have a diagnosis. Cystitis can be diagnosed with an urine sample and treated with antibiotics.
  4. citybug

    citybug Senior Member

    Messages:
    522
    Likes:
    36
    NY
    I had a horrible time with a sigmoidoscopy reacting to the meds, trying to check into hospital, getting compazine, passing out on subway, so not anxious for colonoscopy. In fact had parasite then and was one of elements starting me/cfs. Have done the urine samples often negative.
    I'm looking for someone with the same kind of pain, like a small coal until it catches on fire. Or who can say that is not typical of cystitis or colitis or diverticultis.
    I think I should see a doctor too, but they spend all their time doing data entry and whisk you out the door before you realize they didn't answer anything. The last time I refused to be whisked, but got no further. Very annoyed with specialists who have their few inches of territory.
    Thanks for replies.
  5. Nielk

    Nielk

    Messages:
    5,075
    Likes:
    4,611
    Queens, NY
    citybug,

    I have had my endoscopies done in the doctor's office and by now, it's a pretty easy test to take. definitely worthwhile-imo.

See more popular forum discussions.

Share This Page