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Current Book to give to family on why I am they way i am?!

Discussion in 'General ME/CFS Discussion' started by place, Apr 29, 2014.

  1. place

    place Be Strong!

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    Serously, just had huge fight with mother about how I don't want to have a relationship with her because I won't go out to dinner with her at night. And if I do make plans, I often break them. So now i just don't make them and she just doesn't understand.


    I do work, easy-ish job, only 30 or so hours a week (I think, I should clock myself). I know the next sentence will not match the first sentences but… I run a mid size company that allows me to be flexible in my work hours. So I come in late if I need to sleep, I work Saturdays and Sundays if I go home early on the week days. My mom seems to think I work tooo much and I am chosing work over socializing.

    Its when I finally get home, I need to rest. Ughhhhh WTF does anybody have a good current book that she could learn from?
     
    ggingues and minkeygirl like this.
  2. SOC

    SOC Senior Member

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    Why don't you just send her here to read for a bit? Maybe she'd figure out you're doing pretty darn well for a person with ME/CFS and get off your case. ;)
     
    amaru7 likes this.
  3. lauluce

    lauluce as long as you manage to stay alive, there's hope

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    argentina
    that's an excellent idea! But in my view, a good option would be to hand her the canadian consensus criteria, explaining the symptoms of CFS and the Primer for Clinical Practitioners from IACFS/ME, that explain biological alterations found in CFS, treatment, etc. Here the links:
    canadian consensus criteria : http://www.name-us.org/DefintionsPages/DefinitionsArticles/ConsensusDocumentFull.pdf
    Primer for Medical Practitioners: http://www.iacfsme.org/LinkClick.aspx?fileticket=zYEzLn11Ej0=&tabid=509

    I have the exact same problem than you with my family and I understand you by heart, buy they are not ready to read anithing that I handle them, I hope that you´ll have better luck, hugs
     
    helen1 and SOC like this.
  4. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    Left Coast
    I like a few YouTube videos. Maybe that would help. Type in Myalgic encephalomyelitis



     
  5. place

    place Be Strong!

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    Soc- Thanks so much. She is not good at the Computers and the internets. But I can print out select stories for her to understand that I may be doing well today but in the drop of a hat could be bed bound. Pacing is the number one issues we need to keep.

    Lauluce- Along with the post, this would be good to give a definition. It is a true picture.

    Thanks for the help guys!
     
  6. place

    place Be Strong!

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    Yes You Tube! Even better! Thanks so much minkeygirl!
     
    minkeygirl likes this.
  7. WillowJ

    WillowJ Senior Member

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    I'm pretty sure the "revised Canadian" definition discusses people who can work but not socialize.
     

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