1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
Discuss the article on the Forums.

CURED CFS/ME? PLEASE SHARE YOUR STORY HERE.

Discussion in 'General Treatment' started by richard86, Dec 8, 2013.

  1. undcvr

    undcvr Senior Member

    Messages:
    792
    Likes:
    127
    NYC
    My CFS is viral based. I have a whole bunch of herpesviruses in me that I fight to contain each day since I have had them. I find that taking BHT and then giving your body some time to detox aka clear out the havoc wrecked since day 1 is the best way to go. All protocols are supposed to last a lifetime.

    The only positive thing I can say about this is that after having lived with it for so long I am now more sensitive to the symptoms and can be more poractive instead of reactive towards it.
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    3,570
    Likes:
    4,193
    Cornwall, UK
    What's BHT?
  3. ask2266

    ask2266

    Messages:
    29
    Likes:
    52
    Atlanta, GA
    I'm 100% recovered; however, I consider myself in remission.

    I had CFIDS under the canadian criteria for 4 years --from 2006-2010-- I got it after being in a coma and having septic shock. I had every symptom in the book-- fatigue, insomnia, post exertional malaise, dizziness, brain fog, yeast infection, wired and tired, tingling in nerves, light sensitivity, total disability etc.) My only pathogens are viruses (EBV, HHV6, Parvo). After 3 years on Famvir and Valtrex, (and numerous supplements), I did a 10-month course of Valcyte at the end of 2009. After the course was over, I got better and better every month until I felt 100% normal in mid-2010. Since then, I have been doing really well.

    I only consider myself in remission because I ran a half marathon in 2012, and I had a brief resurgence of insomnia, yeast infection and brain fog. I took that as a warning and went back on antivirals and stopped running long distances, and the symptoms went away. Since then, I've been doing great, but I did have to go back on Cortef for Adrenal fatigue issues (VERY different than CFIDS-- only can't wake up in the morning, as opposed to the systemic fatigue and all encompassing problems of CFIDS), and I now take cortef so I can exercise.

    I see Dr. Kogelnik to stay on top of things. I think I will take antivirals and cortef for the rest of my life.
  4. Radio

    Radio *****

    Messages:
    453
    Likes:
    249

See more popular forum discussions.

Share This Page