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CSF Study appears on Fox News

Discussion in 'General ME/CFS News' started by cigana, Feb 27, 2011.

  1. cigana

    cigana Senior Member

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  2. SpecialK82

    SpecialK82 Ohio, USA

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    thanks for posting, great to see coverage, but I was kind of cringing all the way through it. I kept thinking PEM, say PEM, the illness was minimalized unfortunately.
     
  3. Enid

    Enid Senior Member

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    Lovely to see - thanks for posting cigana. The "science" really is taking hold now. Slowly consign PACE rubbish to history soon. "There really is something going on" - oh yes !
     
  4. SpecialK82

    SpecialK82 Ohio, USA

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    You know, Fox might need some good education on the disabling nature of this disease. If we could come together - emails, letters, or a group letter with our signatures, maybe they would investigate further. Unlike Broadcast news shows, Fox has 24 hours a day that they need to fill - they are hungry for news - we could suggest other doctors to interview as well like Dr. Donnica Moore.
     
  5. alex3619

    alex3619 Senior Member

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    Hi, the thing that annoyed me was this: while the word syndrome was used at the beginning, the "chronic fatigue" designation was used a lot by the reporter. At least Katie Couric got it right.The doctor also said that sometimes exercise and physical therapy works, which is ok, but it can be confused with the nonsense CBT/GET claims. Of course he missed PEM as discussed before, and he seems to not realize this isn't the first mention of proteomics in ME/CFS research. I really wish he at least mentioned research by the Lights, but then he had much less than three minutes, and probably had never heard of it anyway.

    Bye, Alex
     
  6. glenp

    glenp "and this too shall pass"

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    Comments

    I didn't see anywhere to post comments? It looks to me like describing someone who is tired and hurting (like osteo arthritis), it doesn't show the true illness

    glen
     
  7. eric_s

    eric_s Senior Member

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    The title is a catastrophy but the piece was not bad. And i want to marry the presenter... lol
     
  8. xchocoholic

    xchocoholic Senior Member

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    IMHO, Dr. Seigel is wrong about the muscle pain being the main symptom of CFS that distinguishes it from depression. I haven't had that in a couple of years now. My muscles USED to go into spasm over the slightest stress but now even if I do something that stresses them, the stiffness and pain is gone in 24 hours or less ... kow ... don't want to curse it ... Unfortunately, I have no idea what I did that stopped this ... the Paleo diet would be my first guess.

    I hope other doctors realize this ... tc ... x

    PS. I was really disappointed that he didn't mention PEM or orthostatic intolerance ... : (

    Why is it that we know more than the doctors who are diagnosing and treating people for this ?
     
  9. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    Because to us it's all-important... this is our life. To the doctor, this is one or five annoyingly complex patients among his whole practice, which he (or she) hasn't the time or resources to devote to reading the actual literature. Normally whatever s/he needs to know, is taught in med school, continuing ed courses, or professional conferences, or can quickly and easily look up on reputable site like CDC or Mayo Clinic.

    Ha.

    Normal sources of info don't work in this instance.
     
  10. xchocoholic

    xchocoholic Senior Member

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    Hi Willow,

    Thanks .. that was a great answer ... too bad it's the truth ... tc ... x
     
  11. Wayne

    Wayne Senior Member

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    Thanks for posting this Cigana. I actually thought it was good to very good. So many things could have been done better, but it seems like one more step in the right direction as we continue to navigate this very big "perception transition" from psychosomatic "yuppie flu" to biological disease. It's not happening overnight like we would all like, but from what I can tell, the train has left the station. And there's no going back.

    Wayne
     
  12. RestingInHim

    RestingInHim Realist

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    thanks for posting this, cigana. my mom told me about the report, so was good to see it for myself. sorry...but as a person whose had me/cfs for 18 years...this guy knows nothing about it! and he reinforced the idea that it can be overcome through exercise...which is what my mom got out of it. ugh!! but then i'm grouchy...in midst of a big flare-up.

    gotta get back to resting....
     

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