The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
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Crps (local) = Cfs (global)????

Discussion in 'General ME/CFS Discussion' started by JollyRoger, Jul 13, 2017.

  1. JollyRoger

    JollyRoger Senior Member

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    There are a lots of similarities between crps and cfs for example the finding of the same autoantibodies and the successful treatment with rituximab.
    (http://forums.phoenixrising.me/inde...ted-with-plasma-exchange-and-rituximab.37725/)

    I'm wondering if the local damage in crps could be global in cfs.

    - the same autoantibodies
    - vasodilatation which lead to low blood volume (local vs. Global)
    -Low perfusion which lead to hypoxia and low ATP production
    -autonomic dysfunction
    -endocrine dysfunction like low cortisol
    -sickness behaviour (neuroinflammation)
    -Cognitive deficits
    -disturbance of the immune system
    -muscle pain
    -sometimes occurs after vaccination
    -and of course the problem to get a diagnosis and treatment:)

    Many of them first got the diagnosis fibromyalgia.

    My idea:
    Trauma induces a "local version of Cfs" with all its symptoms; some local, some global.

    One of my sources:

    https://www.google.de/url?q=https://www.sudeckselbsthilfe.de/app/download/5793256100/Systemic+Complications+of+CRPS.pdf&sa=U&ved=0ahUKEwjzs5z4w4bVAhXCalAKHTrJDdQ4KBAWCB0wBw&usg=AFQjCNGvVmWMuIVOjoF-w_pWuW_WWpghYA
     
    Last edited: Jul 13, 2017
    Pen2 likes this.
  2. abc123

    abc123

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    Thanks for posting re CRPS and CFS and your research.

    I just came across this--a treatment in Verona, Italy with infusions of Neridronate, with purported success:

    http://crps-treatment.com/

    I don't know anything about that drug, or if it might help with CFS, if it's been tried.

    Also, other treatments I've read about helping CRPS are LDN (low dose Naltrexone), HBOT (hyperbaric oxygen treatment), ketamine (from oral liquid, to shots, to long-term hospital induced coma-type treatments) and vitamin B12...
     
  3. abc123

    abc123

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    Last edited: Aug 24, 2017

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