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Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
Discuss the article on the Forums.

Cross Country Trip to meet other Phoenix Rising community members!!

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jan 24, 2013.

  1. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    Ive tried in the past to get others to do this..but havent been able to get anyone interested in doing that here (Australia).
    ..

    I have in the past got to meet another from the not crazy CFS website, it was great and we both had a nice time chatting outside a cafe. We met up after she had a doctors appointment 30mins drive from where I lived (what was a 2-3hr drive for her to get to that CFS specialist..she stayed the night with her friends in the city so she could get to her specialist).
    K2 for Hope and WillowJ like this.
  2. adin

    adin Administrator

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    Still lots more to see around there that can be done in bite size increments! from fossil hunting by Socorro & touring the VLA to hanging out in Madrid, the Caldera national preserve, ten thousand waves, pagosa hot springs, etc... ! oh, btw, Jen is Devi75
    K2 for Hope likes this.
  3. Tammy

    Tammy Senior Member

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    adin................Hi Aden..........you asked how long I've been in Albuquerque.......I am actually South of you in Alamogordo............the petroglyphs I thought you guys were talking about is just North from me.......not far. Do you guys have a support group in Albuquerque?
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Tammy, adin, Devi75

    We were at the Petroglyph National Park, right on the edge of Albuquerque. When we get a couple more in Albuquerque, maybe we all could meet sometimes. I know of 5 here other than myself and while we communicate regularly it is mostly by phone and electronically as we are scattered around the city and to find a time when everyone is feeling well enough to meet is more difficult than herding cats.

    When Adin, Jen and Karen came it was all spur of the minute and the cats were far flung in their dens (do cats have dens?). Next time we can be better organized (maybe? :confused:) and get more of us together.

    Sushi
    K2 for Hope likes this.
  5. adin

    adin Administrator

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    Tammy we used to live in Albuquerque and are currently attempting to move back—there are several ME/CFS'ers currently in Albuquerque that talk & meet every now and again. You probably want to PM Sushi for more info on everyone in ABQ. Fingers crossed that we'll be there soon. (hopefully we can find a place within the next couple of weeks...we've pretty much exhausted available options in Tijeras/Sandia Crest)
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    adin

    Really hope it is soon!

    Sushi
  7. Forebearance

    Forebearance Senior Member

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    Thanks for sharing this, Karen! I'm so glad you had so much fun.
    Forebearance
    K2 for Hope likes this.
  8. cph13

    cph13 Senior Member

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    Karen, WOW! Glad you all had such a wonderful time. Thanks so much for sharing the experience and giving many of us HOPE! Maybe even ENCOURGE some of us cowards, "like me".
    Photos were the cherry on top. Everyone, Be well.
    K2 for Hope likes this.
  9. Starfive

    Starfive

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    thanks Karen for posting. Being able to share and have understanding is amazing.
    K2 for Hope likes this.
  10. kurt

    kurt Senior Member

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    That was a trip down memory lane for me. Was working in San Antonio and making regular business trips to Albuquerque when a flu-like illness triggered my own CFS. I also had to get out of San Antonio, the heat was too much for me in the summers, although I miss the mild winters.

    Thanks Karen for sharing your trip, I think we CFS patients need inspiration like that, something to look forward to. Even with our limitations there is no reason we have to live monastic lives. But trips or meet-ups definitely take some careful planning and flexibility.
    cph13 and K2 for Hope like this.
  11. K2 for Hope

    K2 for Hope ALways Hoping

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    Tammy:

    I have dreamed of that often, but always thought is was just a "pipe dream". I am glad there are so many here that may be interested in doing something like that.

    To All:

    Thanks for your input as I wanted to be sure everyone realized this was for all of us, not just those who are "moderate", but also for those who are bed-bound, as I once was, to know that it may be possible, some day, to do these things.

    After posting the article, I started to think about an "annual" meetup. But, how to plan, how to manage, almost seemed impossible... but I always stand for Hope. Through it all, that's what keeps me going...

    So, I'm going to start putting that into my brain, as it takes awhile for the blood flow to make sense of it all, and see what we can envision for something like that to happen.

    I am a member of several "meetup" groups, although I cannot attend all the events, I am getting a better idea on how something like that could work. I would love to start a thread about what we could do, at least (or at first) in the US as that is where I live and I don't know the geographical limitations of other nations. Maybe, we can figure out a way to have an annual meeting in the US and other members in other countries could use our initiative to do one in their respective countries.

    Or maybe we just start with regional meetings and go from there. It seems like in my travels there are some that could drive for others and some that would need to be driven...

    Well, my brain is in hibernation right now, so I will have to wait for its' return.

    Peace to all,
    Karen
    cph13 likes this.
  12. K2 for Hope

    K2 for Hope ALways Hoping

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    Kurt:

    I think flexibility is the most important as the planning was a bit haphazard. The idea came about, then was put on hold for several months, then it resurfaced, went under and resurfaced, etc.

    The actual event was "decided" on a Tuesday to leave on that Thursday, but the brain had time, by then, to contemplate what needed to happen to make it reality.

    Inspiration = Hope

    :thumbsup:

    K2
    cph13 likes this.
  13. GcMAF Australia

    GcMAF Australia Senior Member

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    i have heard of herding goannas but never herd (?) of herding cats ROFL
  14. K2 for Hope

    K2 for Hope ALways Hoping

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    Hmm... So, what we are talking about is "herding" people with ME/CFS.... :eek:

    That sounds almost more difficult than either herding cats or goannas.... :D

    (Please don't be offended with this analogy as I think anyone with this illness will understand the complexity we are referring to...)

    I still will try to wrap my brain around something like this, as the exhilaration of meeting people with ME/CFS is worth all the effort it will take.

    I just cannot thank this community enough for all they contribute to everyone's health, mental status and well being. It was because of the members that I even had the beginning thoughts of visiting other ME/CFS'ers and you guys helped me enormously during my "down" times to keep that thought alive all the way to fruition.

    Karen :hug:
    GcMAF Australia and cph13 like this.
  15. GcMAF Australia

    GcMAF Australia Senior Member

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    The only thing more difficult than herding cats, goannas and MEs/CFSers
    is herding doctors and other non believers:rofl:
    Little Bluestem and K2 for Hope like this.
  16. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    If you’re going to herd a goanna,
    You’d better put on your bandana
    And shades for your eyes,
    Then look for your prize
    As you head out across the savanna.
    K2 for Hope and GcMAF Australia like this.

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