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ME/CFS: A disease at war with itself
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Cross Country Trip to meet other Phoenix Rising community members!!

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Jan 24, 2013.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog

    View the Post on the Blog
    The Spitfire, ahimsa, JAH and 11 others like this.
  2. Dreambirdie

    Dreambirdie work in progress

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    I was not able to read the whole article yet... but based on what I did read, I just want to say: YAY! what an adventure! and... I wish I could do that!

    Thanks for sharing your story Karen. :hug: I love the photos. :hug:
  3. K2 for Hope

    K2 for Hope ALways Hoping

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    Dreambirdie:

    LOL, you should have seen how long it took me to write it! Just like when you are at the Dr's office, just look at the pics. :)

    I was asked to post something about the trip (with pics of course) by some of the members as it is so seldom any of us gets to do something like that. And who knows when it will happen again :(

    One never knows with this illness. But, I wanted to share the adventure as I enjoy reading and seeing pics when anyone of us is able to do or go somewhere. It gives me courage to keep fighting and not get so upset when things are not going so well.

    :hug: - back to you,
    Karen
  4. K2 for Hope

    K2 for Hope ALways Hoping

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    If you scroll down to the Petroglyph pics where I am standing at the edge of the "lookout", notice how close I am to the edge as Sushi says "Step back a bit. It will be a really good shot!"
    ahimsa and Valentijn like this.
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    K2 for Hope

    Great write-up! So glad that you shared the story of Phoenix Rising members actually discovering that we exist outside of cyberspace, have personalities, care for each other and that there is the possibility of occasionally sharing adventures together--even heavily "accommodated" adventures!

    Loved that you included pictures! More proof that we actually did this!

    Sushi
  6. Dreambirdie

    Dreambirdie work in progress

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    Hi Karen--AT this point I have finished the article. Well done. :thumbsup:

    I wish I was there. I haven't taken a vacation out of state since 1984. :(
    K2 for Hope likes this.
  7. K2 for Hope

    K2 for Hope ALways Hoping

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    Sushi,

    Thanks for helping me actually get there! (Even with all the U-turns and lost directions...:D)

    I wanted this to be a "feel good" article as sometimes I do feel like I'm just an invisible person with an avatar on the forum...

    I only hope that more of us can do more of this! :)

    Karen
  8. K2 for Hope

    K2 for Hope ALways Hoping

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    Oh, Dreambirdie, I know exactly how you feel. That was one of the reasons for publishing this.

    Sometimes, I wish we all lived in a "little" country somewhere.... with Dr's and caretakers and friends where we could at least get together once in a while - even just for dinner, so we could see each other's faces with that understanding that only those of us who are truly ill understand and know about.
  9. WillowJ

    WillowJ Senior Member

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    thanks so much for sharing. this is amazing.

    I do think it would be really nice if we had a teleporter we could use to have visits like this, even if for some of us it would be more like having a cup of tea or watching movies, rather than seeing the sights
    K2 for Hope likes this.
  10. K2 for Hope

    K2 for Hope ALways Hoping

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    WillowJ:

    A teleporter? ;) Yikes, would we get some kind of notice???? :eek:
  11. WillowJ

    WillowJ Senior Member

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    yes, it would be entirely directed by the users! :)
    K2 for Hope likes this.
  12. WillowJ

    WillowJ Senior Member

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    do you think I read too much science fiction? :whistle:
    leela, Valentijn and K2 for Hope like this.
  13. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Second Life has a teleporter but, alas, it only teleports Avatars!

    But if you think about the stats on this illness, it would seem that about 1 in 300 have this illness and some of them are bound to be your neighbors. I know of 5 in my area (most on this forum) and we do communicate and even occasionally see each other!

    Sushi
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Karen, Adin and Jen used a teleporter though a very old fashioned kind with 4 wheels and a big engine!

    Sushi
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  15. K2 for Hope

    K2 for Hope ALways Hoping

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    Willow,

    I thought this whole illness was science fiction. (at least I used to think so.... :ill: )

    I mean where else can you go to do less???? I'm almost sure we live in another world... :alien:

    Karen
    leela likes this.
  16. GcMAF Australia

    GcMAF Australia Senior Member

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    wow a dream story come true
    I wish some one would port our TV (teleport) to Pluto
    I feel more hopeful in Australia, and that the Lyme people are leading a charge of the cavalry.
    K2 for Hope likes this.
  17. K2 for Hope

    K2 for Hope ALways Hoping

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  18. Dreambirdie

    Dreambirdie work in progress

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    Great to see more pics. Thank you Karen!
  19. K2 for Hope

    K2 for Hope ALways Hoping

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    Easier for those of us who are not "scientists" and hopefully, will give some hope to all!
  20. GcMAF Australia

    GcMAF Australia Senior Member

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    K2 did you pick up some great snake stories??;)
    do they have snakes there??
    K2 for Hope likes this.

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