Eco, I agree with everything that you say. We need action now...but, we need someone to direct us as to what exactly we need to do. I too am working on the back channels with some patient advocates. The problem is that we need ONE unified front. At the one end we have clinicians and researchers who have concerns. There are different groups of advocates trying to work on different issues. As far as I know, we could be double or triple tasking..or worse, some fronts are not even tackled. It would be great if we had a serious group who could take the lead and direct everyone. This is where the CAA could have stepped up and shown us what kind of leaders they really are but, they have outrageously failed us! I wonder what stand they would have taken, had they been in their earlier days when they were true patient advocates and were not involved in research. Thid lack of leadership, I believe is our greatest problem right now.